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Anyone else have Neurofibromatosis? |
would like to talk to others. I have it so does 2 of my 3 children Condition in which there are tumors of various sizes on periphalnerves. They are also know as fibromas or neuromas |
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| Non-Hodgkin Lymphoma Nicotine Niacin Neuropathy Neuromuscular Disorders Neurologic Diseases Neurofibromatosis Neuroblastoma Nerve Diseases Nephritis Neoplasms Neck Disorders Neck Injuries |
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Depends type one or type two? I have type one. For more info go here ... I have nf type one, while the elephant man had Proteus Syndrome, which is a worse then nf. Here are some sites about nf that should help you out. ... There is trial type stuff out there, but nothing that has shown any promise. But the univeristy of phenoix and chicigo are working together and they're might be something they can test on thos... Do you have NF1 or NF2? Go to your search bar and type in Neurofibromatosis and research the listed sites. You can also type in Alternative Treatments for Neurofibromatosis and see what options a... It is amazing how prevalent a disease can be, and yet so unknown. Neurofibromatosis (NF) is the most common neurological disease caused by a single gene. Both forms, NF1 and NF2, affect more than 1... yes, but unless you've had signs of neurofibromatosis from birth its unlikely you have it now. Far more likely is a benign solar keratosis - a raised rough warty greyish or brown lesion that a... That sucks. I'm 23, but I have type 1, I was diagnosed with it when I was 15. I suppose you take one day at a time and hope, that a cure is found for it. ...yes , my son had it and i hope you are being followed by a neurologist on a constant basis. its very important ..... ... |
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