Is ther anybody with neurofibromatosis, and how do you feel about it?

My boyfriend has it, and he's gone through a lot. Many surgeries over the years (and he's only 29) and a rough childhood with teasing and hospital stays. I think NF ultimately produces some incredibly brave people, who have been through a lot. Right now we're dealing with a particularly difficult obstacle that NF has put in front of us. What I think now is... I'm glad I've found people here talking about it and I hope awareness increases. And, of course, I hope for a cure.

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Related information

Does anyone else have neurofibromatosis?

I have NF and My entire back and neck are brown. My first surgery was 15 years ago to remove a 5lb tumor. I have had to go back three more times to remove excess skin or bulk. I hate it because...

I have cafe au lait and also neurofibromatosis. What are the chances of my child have cafe au lait and/or NF1?

It has autosomal dominant inheritance pattern. So, assuming your spouse does not have neurofibromatosis and is recessive (aa), and you are either homozygous or heterozygous (AA or Aa). Your child...

Dose anybody know if theres an neurofibromatosis specialest in any london hospital ????

The easiest way to find that out is call one of the hospitals and ask. If there is one in one of the London hospitals they will be able to tell you which one.

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Im 38 and think i have neurofibromatosis what can i do?

I'm surprised you're that old and haven't been diagnosed before this. Have you not had any symptoms up til now? Anyway, if you're lucky, you won't get too many flare-ups an...

Where can I find information on Neurofibromatosis?

Neurofibromatosis is a autosomal dominant genetic disorder.

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Can i have some help about Neurofibromatosis??

The neurofibromatoses are genetic disorders of the nervous system that primarily affect the development and growth of neural (nerve) cell tissues. These disorders cause tumors to grow on nerves and...

What kind of genetic mutation is Neurofibromatosis?

In 50% of cases, a parent passes the defective NF gene (i.e., NF1 or NF2) to an offspring, resulting in autosomal dominant transmission. The NF1 and NF2 genes have tumor suppressor function. Rarely...

Hello, Im looking for anyone with Neurofibromatosis.?

Here is the Yahoo Groups link for people with NF. Hope it helps. Good Luck. ...