mcrh.org
*Home>>>Neurofibromatosis

Hello, Im looking for anyone with Neurofibromatosis.?


I'm looking for anyone that has NF who wouldn't mind sharing the struggles that they had to face in society and personal. I'm 26 years old and my mother and my self are the only two people in our family born with it. I hoping to piece together a screenplay, having the main character, living with NF, following dreams and the stuggles they will have to face. Thanks for any help that you have to offer.

Here is the Yahoo Groups link for people with NF. Hope it helps. Good Luck.
http://groups.yahoo.com/search?query=Neu...

Tags
  Non-Hodgkin Lymphoma   Nicotine   Niacin   Neuropathy   Neuromuscular Disorders   Neurologic Diseases   Neurofibromatosis   Neuroblastoma   Nerve Diseases   Nephritis   Neoplasms   Neck Disorders   Neck Injuries
Related information
  • Can you breastfeed if you have Neurofibromatosis?

    It varies for every woman, Many women with neurofibromatosis have no problems breast feeding or minor problems that can be over come. My best advice is there's no harm in trying. Is there a br...

  •  

    Categories--Copyright/IP Policy--Contact Webmaster