| Do you want Neurofibromatosis information? This category is your resource for helpful Neurofibromatosis infomation. The Editors of this Neurofibromatosis site collect frequently Neurofibromatosis questions and Neurofibromatosis tips for your searching and browsing. Hope you can find useful advice what you want.Happy surfing! |
| Neurofibromatosis |
| Neurofibromatosis...? |
Both my son and husband have type 1 nf, so does my mother in law and a sister in law. You can have the lumps (which are actually neurofibromas) removed but it has roots (kind of like a wart) and t... |
| Neurofibromatosis.....????? |
I have it as well as my Mother had it, and her mother my Grandmother had it, one of my Grandmothers sisters had it. My mother only had one brother who had it. My son's do not have it. I have ... |
| Can neurofibromatosis type 1 be detected before its symptoms appear? if so, how and when? |
With blood work you probably can. Go to this site for more info
... |
| Neurofibromatosis lumps and cancerous Lumps how do you tell the difference? |
The incidence of vonRecklinghausen's disease becoming neurofibrosarcomas is very rare. In reviewing the literature for an article I wrote, I found the possibility of malignant transformation f... |
| Neurofibromatosis??? |
My son has NF1, and each and every case is different. I once asked his doctor are people as severe as John Merrick still born to this day, he said yes...however with modern medicine, you'll ne... |
| Neurofibromatosis? |
I am a 27 year old woman with nf1, I have several neurofibomas on my body and few within that cause pain. I also have 2 in my brain, which at this point, have caused no problems other than headach... |
| Anyone familar with Neurofibromatosis? |
It is possible, neither one of my parents or my siblings, grandparents, aunts or uncles had it and I was born with it, we found out when I was 15. The only person we know of in my family that had i... |
| Treatment for Neurofibromatosis and cafe-au-laits as a result of said disease.? |
Unfortunately, I am not aware of a treatment for the cafe au lait spots. I guess if you have a mild case, you can try to cover some of the spots but I would defer to a female who uses make up. F... |
| What is neurofibromatosis ? |
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethni... |
| I have Neurofibromatosis? |
I have NF type 1. There is a 50% chance of passing this on to your children. It does not make your pregnancy higher risk.
I have two children. One has NF one doesn't. NF varies in degrees... |
| Neurofibromatosis (NF1)? |
... |
| Neurofibromatosis Type 1 and 2? |
Neurofibromatosis type 1 - mutation of neurofibromin chromosome 17q11.2 (Incidence is 1:3500)
* multiple neurofibromas on the skin and under the skin; the subcutaneous lumps are characteristic of... |
| Do you have Neurofibromatosis? |
Hello,
I have Neurofibromatosis 1. Diagnosed when I was 18. If you are still interested e-mail me @ MsMWalker@aol.com ... |
| I have Neurofibromatosis dose any one have it? |
yes ... |
| I have neurofibromatosis.? |
It would be at your own choice, though you can still have babies with NF. There are a couple of things you should know. One is if you have NF and are pregnant, your NF can get worse while your preg... |
| If you are a teenager or an adult with neurofibromatosis NF1, NF2 or schwanamotosis. what are your symptoms? |
I am 26 and have nf1 and vonrichkenhause (not sure on the spelling on that), but my tumors didn't start to appear until I hit puberty. I have spots all over my chest (and some lumps). I will... |
| Biochemical basis of von Recklinghausen syndrome a.k.a. neurofibromatosis type I??!! HELP?!!? |
This is caused by a mutation in the gene coding for the protein neurofibromin type 1 (NF1). This mutation is autosomal dominant. In 50% cases the mutation is not inherited but spontaneous. This pro... |
| How many of you have heard of Neurofibromatosis? |
i have NF
did you know your kids have a 50/50 chance of passing it on.. to their kids..
? ... |
| Is there anyone else out there with Neurofibromatosis? |
I have NF1, and have a number of neurofibromas at various places of my body. I have had several cut out over the years but as you know, new ones will form from time to time. Since the condition i... |
| At what age do symptoms of neurofibromatosis start to appear? |
From infancy to 16 years of age.
Neurofibromatosis (NF) is a condition that causes tumors to grow on nerve tissue, producing skin and bone abnormalities. NF is often diagnosed in childhood, occasi... |
| Is anyone here familiar with Neurofibromatosis? |
I have had 6 large tumors removed from my body, and have been thought to have Neurofibromatosis, but all doctors involved in my treatment couldn't agree on a diagnosis. My tumors have been se... |
| Upper abdominal and flank pain?-neurofibromatosis? |
My best guess is, it's the Neurofibromatosis. I have a large mass on my right upper part of my leg, it hurts like heck, comes and goes, can be a sharp pain, other times it feels like a pinch. ... |
| Does anyone have Neurofibromatosis Type 1? |
I have it. I to have the pins and needle feelings and sometimes the numbness, feeling which led to me getting another one of those fun MRI's which they found tumor pressing against my spine ar... |
| Multiple Sclerosis and neurofibromatosis? |
At NO POINT during my consultations have they ever mentioned MS and I hope they never do. We have enough to contend with!!
I do however, get the odd bout of pins and needles
NF Sufferer. ... |
| A question about Neurofibromatosis and amputation(s)? |
My son has NF1, and has had surgeries (one very major), but none for aputation.
I don't know how old you are, but the Childrens Tumor Foundation has a chat room for kids and teens with NF t... |
| Re: Neurofibromatosis? |
Sorry to ask spud but what NEUROFIBROMATOSIS? ... |
| Can neurofibromatosis affect breastfeeding? |
It sounds like your NF is causing some problems for you, mainly discomfort while breastfeeding. What remains to be seen is if the NF is causing your low breast milk production. If the nerve impulse... |
| Is neurofibromatosis Cancerus? |
In about 5% of cases it can be. I have neurofibromatosis, just last week I had 35 neurofibromas removed. If you want to talk contact me. tlarson58103@yahoo.com ... |
| Neurofibromatosis Type 1? |
www.nfinc.org.
www.ctf.org
www.nfinc.org
www.understandingnf1.org
... |
| Neurofibromatosis does anybody else have to deal with this pain in the a$$??? |
I have neurobfibromatosis. and since if I was to have
any children they would of had a 50/50 chance of getting
it I opted not to have any kids. I also have 3 Brothers and
1 sister that has it as... |
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