Please please anyone know about NF??

my best friend has neurofibromatosis..it's a rare genetic disease of the nerves where tumors grow out of your skin..it is not curable and cen be painful. mostly it just makes her feel terrible about herself and it kills me. does anyone know someone with this disease i think the best thing for her is to talk to somebody with the same experience. thank you!

I don't personally have it, but there is an organization that may be able to put her in touch with a support group. It's called Genetic Alliance:

www.geneticalliance.org

I hope it all works out for you.

Tags

　　Niacin 　　Neuropathy 　　Neuromuscular Disorders 　　Neurologic Diseases 　　Neurofibromatosis 　　Neuroblastoma 　　Nerve Diseases 　　Nephritis 　　Neoplasms 　　Neck Disorders 　　Neck Injuries 　　Nearsightedness 　　Nasal Cancer

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