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Faux mono? I'm plagued...help me!?


Junior/Senior years of HS: Get a mono like illness several times; I am very very sick, comes up negative in blood tests for epstein bar. Dr. can't help.
Freshman year of college: Get very sick around finals, in the Spring I test positive for mono. Lasts a full 2 1/2 weeks before I'm really back on my feet.
Ever since I have struggled with some sort of risidual "faux mono" disorder. If I don't take good care of myself (particularly not get enough sleep, get too stressed and stretch myself too thin) I am very likely to get very sick. Symptoms are usually very swollen and sore glands in the neck, EXTREME fatigue, sensitive stomach, spiking fever that reaches near 102 at times, terrible body aches, very bad pain in the back of my head where it meets my neck, and then all the way through my neck and shoulders.
I've been to several doctors, and a nutritionist. No one seems to know what is wrong with me but it is a huge problem. It's been going on for almost 4 years. Help!

I think that the same virus that causes mono can also cause Chronic Fatigue Syndrome...many sufferers that I have talked to have similar symptoms to what you have described.

There isn't really a good treatment, other than taking incredibly good care of yourself and avoiding unnecessary stress.

Talk to your doctor about whether this might be a possibility...and maybe look into a support group if this is the issue you're facing.

sounds like strep

A fever of 102F usually means an infectious process, so if you haven't already, you need to see an infectious disease specialist and they will likely want to try to get blood cultures during a spike. If you haven't already, you need an HIV test as well. You might also consider a rheumatologist to rule out some kind of an autoimmune disease.

I wouldn'tm presume to diagnose but as a speculation, your symptoms remind me of a friend who had similar ones off and on with no apparent cause. She also had periods of a runny nose without other symptoms. At one point she was hospitalized with a severe headache and found to have a brain infection (encephalitis).

Testing this time revealed she had an abnormal opening at the base of her skull that allowed cerebrospinal fluid to leak to the outside and allowed microbes to get in. After this was surgically repaired, her outbreaks stopped forever. It's about a one in ten million odds, but it couldn't hurt to ask.

My stronges recommendation would be that infectious disease doctor. And since those neck and back symptoms could indicate some kind of menigitis, even if they haven't been diagnosed fully in the past, you need to take these very seriously.

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