Any one else have Myositis? There are several forms of this disease.?

Does anyone here know of the Myositis foundation. Any one else diagnosed with the disease? I know I am not alone.

Myositis is a rare disease in which the immune system chronically inflames the body's own healthy muscle tissue. No one knows what triggers the immune system's attack. Persistent inflammation progressively weakens the muscles. Myositis can take several forms, usually develops slowly over time and can range in severity from mild to debilitating or worse. Both children and adults can get it.
Although there is no cure for myositis, prompt and aggressive treatment to reduce inflammation of PM and DM can help prevent muscle weakness from progressing and might help restore some of your strength. Medications: Corticosteroids (i.e., prednisone) and other drugs that suppress the immune system (immunosuppresants) may slow down the attack on healthy tissue and improve skin rash. Your doctor will probably repeat blood tests throughout your treatment for myositis to monitor improvement. You may also want to use nonsteroidal anti-inflammatory drugs (NSAIDS) such as aspirin or ibuprofin for pain relief. Exercise: After drug treatment takes effect, a program of regular stretching exercises prescribed by your doctor can help maintain range of motion in weakened arms and legs. Physical therapy may also help prevent permanent muscle shortening. You may also want to add whirlpool baths, heat and gentle massage. Rest: Getting enough rest is an important component of managing myositis. Take frequent breaks during the day and limit your activity.
Hope this helps
Matador 89

i was a couple of years ago and the doctors said it was deadly but i survived wat is it anyway?