Help for my Son....?

My Son is 15 yrs old. He's 5' and weighs 76 lbs.
This is all due to his medical conditions:
Eosinophilic Esophogitis,
Severe G.E.R.D.
Lactose Intolerant
Metabolic Myopathy (muscle weakness) with a Carnitine Defiency.
Anorexia (due to not being able to eat right)
His stomach takes 3 times longer to empty than normal.
He has been like this all his life. But he is not growing properly.
They said he's 1 1/2 yrs behind in growth - when they did a bone scan.
He gets extremely weak and will just stay in bed for 48 hrs. Not being able to do anything.
Every year he would try to go to school. It got to be too much for him and was always placed on home bound. Now we are enrolling him for Cyber School so he can just do it all from home. Hoping to eliminate his stress as he always worried about feeling good enough to get to school.
Doctors have tried steroids, medicines to increase his appetite (which doesn't help due to his muscles being weak and not working properly).

The last resort will be a feeding tube to try to get him the nutrients he needs.
I DO NOT want this for him.
It is breaking my heart seeing him in bed sometimes.
He does good, will play with friends, and then it puts him in bed for 2 days.
I'm wondering if there would be a good vitamin I could give him, that will help with his nutrients?
He does drink Boost (similar to Ensure), 4 cans a day. That is the only way he has grown at all.
His myopathy is from the family.
I have it and so does 1 of my older brothers. We feel it came from our Mother, but she passed away after child birth with me.
I have had 2 muscle biopsy's done to try to get some answers on what they can do for our problems. Both times it has come up inconclusive.
We just have to live with it.
They know what the body is doing but can't do anything to correct it.
Any ideas on a good vitamin for my son?
Thank you for taking the time to read my story.
Sometimes good to get it out :)

Wow that is alot to deal with and I hope this helps even a little.
My son has a neuro-muscular disorder. Congenital myopathy possibly in the mitchondrial myopathies. His doctors still dont know which one. But it is in the family of metabolic myopathy. His neurologist put him on Co Enzyme Q10. It has really helped my son. My son is 9 and takes 200mg daily, sometimes up to 400mg if he has been more active. This supplement has made my son much more active better energy levels. It truly has worked wonders for him. Ask his neurologist about it. They have been doing trials and studies with co enzyme for quite awhile especially with Duchenes patients. I also wonder is he on a cartinine supplement? Digestive enzymes, so his stomach doesnt have to work so hard??
I hope this info helps I know how hard it is when your child is ill. And I hope you will be blessed with an improvement in your sons condition as I was.
Its not a cure but for us any improvement is a Good Day!!!
My Best Wishes for You and your Son.

have you seen an endocrinologist, and talked about possible growth hormones? Just a thought, but I would ask your pcp about it.

I know this may sound crazy...but maybe you may want to try cannabis.

He is 15 years old now.

has he ever been to st.jude?cause i know someone who's child had similar problems and got some results there.
for vitamins,just talk to someone at GNC,they usually know they're stuff.God Bless you and your son.
have you been to someone who practices hollistic medicine,cause they know all the vitamins and can take some alterative measures maybe like acupuncture.

A feeding tube can be a blessing.

Placement of a gastric tube is a relatively minor procedure.

There are a lot of "button" style g-tubes that are small, lie close to the skin, and are not detectable under clothing. Many of them are simple construction and can be replaced at home.

A G-tube allows feeding of super-high concentrated formulas that aren't particularly tasty. It enables feeding while your son is sleeping, when he's feeling ill, and anytime he just doesn't want to eat.

It's been a life-saver for my son, who is 17, 5 ft, 80 lbs.

I know where you are coming from and how you might feel because I too had a son named Clint who was born normal but at age 3 months had spinal meningitis. He eventually died at age seven from all the complications that this disease put his little body through. I was a father and he was my first born son. So it must be very difficult to be the mother who brought this little man into this world by birth and see your dear son go through this. My son was flown by flight of life out of town 5 times through his life time and delivered by rescue 2 times to distant hospitals. He lost all most all his brain function and developed cerebral palsy's , blind and deaf and he too had a feeding tube in his stomach. So I know how hard it must be for you to go through this, and my heart goes out to you and I will pray that God helps your son and gives you peace about your son being in His hands. Just don't make the fatal mistake I did when my son went through this. . I blamed God for not caring about me and my family or I felt at that time He would have never let it happen. And He would have healed him. I later learned from God that Clint would be waiting in heaven to greet me when I got there and He would be my teacher and show me what God has taught Him. It was also a reason to Give my life to the Lord so I could see my son again someday. I really don't know what to say even going through something like what you are dealing with except seek God for the answers and help you need. Remember He knows that all thing work out for his purpose and for the good. God Bless you and your family