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Limb-girdle-Questions.? |
Hi everyone im new to the group. A little about myself im 23 yr male soon tobe 24 im married with 3 wonderfull kids.I have some questions about LGMD. First of all, your doctor seems to have run all the correct tests. So, that is a good thing. I seriously do not think that your renal failure had anything to do with your crunches. What did they say about it when you were in the hospital? It sounds to me like you have a bunch of different things going on. Have you ever heard of fibromyalgia? Myalgia means pain. it is generalized pain that can last for days, and there will be 18 tenderpoints that your doc can test. I assume you are seeing a rheumatologist. That would be one more thing to test for, and rule out or not. It puts me in bed for days at a time. Sounds like you have a lot of research to do. if it makes you feel better look for a support group on line that deals with LGMD, tell them your symptoms, and they will really be able to help you. I have never heard of this, but I recognise the symptoms. I also get a bit shakey when I put weight on my knees and hips. I have had physiotherapy and that strengthens some muscles I wasn't using, but I need them to be working for full strength. I am less shakey when I have done the exercises for a few days. |
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