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Besides chemo, how can I treat Myelodysplastic Syndrome?


Bone marrow tests showed low platelets, and blood cells dying before they reach maturty, but very low blast cells.

here are some links to MDS and clinical trials and bone marrow transplant (if that applies )

Myelodysplastic syndrome

http://www.rarediseases.org/search/rdbde... (NORD鈥croll down for support organizations)
http://www.aamds.org/aplastic/ (aplastic anemia and MDS organization)
http://www.aplastic.org/aplastic/disease... (about MDS and MDS drugs)
http://www.aplastic.org/aplastic/disease... (drugs for MDS)
http://www.aplastic.org/aplastic/disease... (FDA warning on erythropoetin stimulating drugs..epogen, aransep, procrit..can cause increased tumor growth and heart attack in cancer patients with anemia)
http://www.aplastic.org/aplastic/patient... (MDS clinical trials)
http://www.clinicaltrials.gov/ct/search;... (MDS clinical trials鈥it map to find local trials..don鈥檛 forget to turn pages to see all trials)
http://www.cancer.gov/Templates/doc.aspx... (national cancer institute clinical trials鈥ind myelodysplatic anemia and chose de novo-newly diagnosed or previously treated and go from there)
http://patientrecruitment.nhlbi.nih.gov/... (patient recruitment for MDS clinical trials and studies at the National Heart Lung and Blood Institute)
http://www.bu.edu/prs/mds/ (Slone patient registry for MDS)

Bone marrow transplants
http://www.nbmtlink.org/ (National Bone Marrow Transplant link)
http://www.marrow.org/ (National Bone Marrow Donor link)
http://www.marrow.org/PATIENT/Undrstnd_D... (National Bone Marrow Donor program鈥cute lymphoblastic leukemia)
http://www.marrow.org/ABOUT/Connecting_P... (about the National Bone Marrow Donor program)
http://www.marrow.org/PATIENT/Undrstnd_D... (clinical trials by type)
https://web.emmes.com/study/bmt/ (Bone Marrow Transplant clinical network)
http://www.marrow.org/PATIENT/Plan_for_T... (financial assistance for bone marrow transplant patients..ie leukemia,etc)

3 books on disease symptoms and treatments

you could also get these books on ebay or amazon or a half price book store. (last two are very similar)..
1.Oxford Handbook of Clinical Medicine
2.Handbook of Diseases (Lippencott)
3.Professional Guide to Diseases (Springhouse)

This was known as a myeloproliferative disorder. No effective treatment other than supportive by transfusions of needed elements. Bone marrow transplants are not done in this age group.

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