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Any information on the progression of myasthenia gravis?


My husband was diagnosed with myasthenia gravis about three weeks ago. (He had a droopy eye and some facial sagging, along with one shoulder, for about two weeks before the diagnosis.)
Since then, even on the meds, the drooping has moved into the other side of his face. He has found that he cannot see well enough to even work most days, what with the drooping and also double vision and similar things.
Is there anyone with insight into what we/he can expect over the next however long? What can he do about things like his job, everyday life, etc? Will this spread to the rest of his body as quickly? Please help...

I have Myasthenia Gravis diagnosed October 1996 with my eye 3/4 drooped, looked like I had a stroke on right side of my face. Eventually it affected my speech. I also had the arm and leg weakness, swallowing and then eventually, I stopped breathing.

Because this disease is rare and some neuros don't treat it properly, it can get very severe. I suggest an aggressive treatment. I was started on only Mestinon which didn't help me at all obviously. Myasthenia Gravis is antibodies that are blocking the signals sent to the receptors at the endplate of voluntary muscles. You have to take meds that halt the antibody production that are called immunosuppressants. These are the same drugs that are used like to prevent kidney transplant rejection. After 2 intubations in July 1997, I was started March 1998 on Imuran and Prednisone. After 7 months, the imuran kicked in and I was like a normal person. Because of the severity of the disease that I experienced, I am able to work part time now and live a near normal life.

Look in your phone book for the Muscular Dystrophy Association. Call them and tell them of the diagnosis and you need to get into a MG clinic doctor. You can also go to the www.mda.org site and click your zip code and that will tell you a clinic nearest you.

Also after diagnosis, the procedure is for your husband to have a catscan of his thymus. Often the thymus is enlarged and/or has a thymoma, whether benign or malignant, is determined by the catscan. Some people get remission just having the thymus removed.

Hope this helps. Feel free to contact me at: missloretta2001@yahoo.com

he shouldn't be working =you need rest for this to get better =read about it in Ask.com

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