mcrh.org
*Home>>>Multiple Sclerosis

Multiple Sclerosis - Need Resources?


I'm looking for resources for Multiple Sclerosis. I know of the main ones - the National MS Society & the MS life lines, etc. I'm looking for more personal sites, interactions with others, etc. Resources that help on a more interpersonal level. Any suggestions?

thank you!
~kaz

Hi Kaz,

The above answers are great. Here is an additional personal website you can take a peek at:
MS Circle of Friends
www.mscircleoffriends.us

Also, click on the link, located on the home page, to the list for the "World's Top Personal MS Websites". You will find a large list of lots of great sites.

I would go to Montel Williams site. He suffers from MS and has a really interesting site.

Ck. out a support group at msactivesource.com/msavProject/msas.port...

Best of luck to you.

http://www.mssupport.net/
http://health.groups.yahoo.com/group/msc...
Here are a couple. I personally most enjoy international support groups as different knowledge about this can be different than my own I have an MS-like condition that in Great Britain, they are reporting 1 in five diagnosed with MS actually have a condition called Antiphospholipid Syndrome. I'm not trying to imply that you do not have this, but I know several people who were mis- diagnosed. I was lucky that I was diagnosed, but my initial diagnosis was MS and I asked them to continue testing me.http://www.hughes-syndrome.org/index.htm
Good luck to you! Chronic illness is a journey.

Hi Kaz,

I'm the co moderator of a Yahoo Group on MS Resources. Why don't you check us out and see if you'd like to join.

Maggie

http://health.groups.yahoo.com/group/MSR...

Kaz, You can go to remedyfind.com where people share their experiences with MS and talk about their treatment and their disease. Also, I suggest that you go to any MS support meetings in your area where you will find people to interact with. I go to the MS meeting in my area. The meetings are not lead by a professional and we all sit around and talk about our lives, provide support to one another and share our experiences with different medications. At the group you will find about the resources in your area that are available to you. Through the group I found about free exercise classes, free swimming classes, and so much more. We all get together for lunches, dinners and movies. The comraderie has been so helpful to me. I wish you well, Kaz!

What I did, when first looking for personal interaction with people who also had MS, was go on Yahoo groups. I joined 4 or 5 groups that looked interesting. After awhile, i whittled it down to one group of girls I had really started to bond with. They are an incredible resource to me.

Tags
  Myelodysplastic Syndromes   Myasthenia Gravis   Muscular Dystrophy   Muscle Strain   Muscle Disorders   Mumps   Multiple Sclerosis   Multiple Myeloma   Multiple Endocrine Neoplasia   Multiple Births   Mucopolysaccharidoses   Mucolipidoses   MRSA
Related information
  • Multiple Sclerosis, Bio 2?

    You will find a wealth of information at (...

  • Multiple sclerosis and cancer?

    My wife is stage 4. They should be able to give you some sort of a time line on the cancer. And yes, other illnesses will exacerbate your MS flares.

    ...
  • Multiple sclerosis and tummy tuck?

    MS should not impact your ability to take part in elective surgery. There aren't any symptoms of MS that would contraindicate having the surgery. Basically, MS won't make your surgery ...

  • Multiple Sclerosis and hair color changing?

    I have had MS for many years and never heard of this,,but i did a quick Internet search and found one med that says it causes hair color.. What Are the Possible Side Effects Associated With Imur...

  • Multiple sclerosis and financial help ?

    Hi there, sorry to hear bout your mrs. As your wife is in receipt of high rate dla for getting around then yes, you are definitely entitled to a car on a scheme called : Motability. Most car sales...

  • Multiple Sclerosis Mom&Son?

    While there is no evidence that MS is directly inherited, there is some sort of genetic link as well. From the MS Sourcebook: "Genetic factors are thought to play a significant role in determ...

  • Multiple Sclerosis,where do they know more about that ill.?

    Here's a website with a lot of good resources: ...

  • Multiple sclerosis exercises?

    Hi Daniel97202, I have MS also. I used to love to walk for miles. Now I can barely get thru the grocerie store. My Dr. told me to extend my legs out, while sitting and do circles with my feet. ...

  •  

    Categories--Copyright/IP Policy--Contact Webmaster