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Hi, can Multiple sclerosis get any worse? |
hi im 13, my mum has had Multiple sclerosis since i was 5 she has become worse resently and doesnt talk and gets feed throuth a tube because the muscles in her throut .i realise she wont get better and have to face being without a mother figure in life i just wonted to know if it could diteriate any more. i always just think maybe there be a magical cure but we"ll see. Hi, sorry to hear about your mum. There's no way to answer your question with a definite answer though. My dad has progressive MS which means he will get worse. It's bad enough that he won't get into a wheelchair when he's tired, but he ends up getting hurt when he falls down. I wish there was a miracle cure, we would be able to see our parents live a better life huh? Do you have anyone else you can talk to about how you feel? I chat to our local MS society and help fund raise for them. They are a great support to me, as much as I help support them. Your mum must be proud though to have such a thoughtful child. My thoughts are with you x You should do some research on it on the web if you can. Apparently, the pain gets worse, but medications can help that. I don't know if there is a magical cure. I know two people who have had multiple sclerosis, and I know they both have good days and bad days. MS is a progressive degenerative disease. However, it's hard to predict changes that will occur. I would say that generally people deteriorate over time. About half of the people who have it get worse and worse. The other half will get sicker, then get better, then sick again, etc. I don't know what kind your mum has. To give you a little hope, I want to share a story of a friend of mine. She was 14 when her mom was paralyzed and in a nursing home for over a year because of it, then she got better and went home and was able to live a normal life again. I hope this is the case with your mom. I'll pray for her. Hello honey, Awww what a grown up girl you are....muggle is right there is two types of ms...primery progressive and the other type where the people have lapses and then get better for a while....my mum has Primory progressive and no she wont get any better, she is now in a wheelchair and gets very tired....I suggest that you see if you can talk to your mums Ms nurse she should have one of those...to see if there is a support group for children who have parents that have ms....or another type of disability....you could even talk to a teacher at school and see if they can help you, at least then you have a trusted adult that you can talk to if you feel that it might upset your mum. Hi honey. I have ms and some days it is really god and some days it is really bad. There are so many god books out there to read up on it. Go to a MS website for the chapter in your area and they alwas have events and get togethers for children of parents living wth ms. My kids have been to some (they are 5 & 11) and they love it. hey can talk to other kids their age going throught the same stuff with the same questions. You ae to young to have t deal with all these feelings by yourself and that is not what your Mom wants either I bet. Email me if you would lke me to find out what chapter you would be in and see what functions there are available. If this is not an option talk to your guidance counselor and see if they have any recomendations for children whose parents have uncurable diseases. |
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