Is there anyone or institution working on amyloids associated with multiple myeloma?

A relative has multiple myeloma with the complication of amyloids. I want to know if there are any scientists researching this area and how to contact them. So far the amyloids, though generally dispersed, seem to be affecting the legs and possibly the heart muscle. Names of scientists, doctors, locations, and contact numbers would be highly appreciated.

Hi,

Amyloids is a rare side effect "malady" of MM; I know that Mayo Clinic is doing some work on this.

For more specific information I would call the IMF hot line:

staffed by trained specialists鈥攁t (800) 452-CURE (800-452-2873) in the US and Canada between 9 am and 4 pm PST; elsewhere call (818) 487-7455

They can give you a list of researchers to contact, I have only met one other person with this; you may also want to contact NORD (national organization for rare diseases)

http://www.rarediseases.org/search/rdbde...

Sorry I don't have the specific info; but they keep very up-to-date list.

the web site is www.myeloma.org.

Good luck

Jewells
34 months and still here

Tags

　　Myasthenia Gravis 　　Muscular Dystrophy 　　Muscle Strain 　　Muscle Disorders 　　Mumps 　　Multiple Sclerosis 　　Multiple Myeloma 　　Multiple Endocrine Neoplasia 　　Multiple Births 　　Mucopolysaccharidoses 　　Mucolipidoses 　　MRSA 　　MRI Scans

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