What do I need to know about multiple myeloma?

A relative was just told he has myeloma, what do I/he need to know about it?

Hi,

#1 - it is NOT a terminal cancer for a lot of people; it is more like diabeties or kidney deseise; dangerous but treatable. I know LOT of people that have had it 10 + years.

#2 - Find a Specialist on MM for him - not just a oncologist, but someone that treats a lot of MM; way too much new information coming out and it is one of the most complicated cancers there is.

#3 - www.myeloma.org; GREAT org seems to be more focused on support groups, 800 number for questions, the patient and caregivers and unlocking the DNA for a cure

#4 - www.multiplemyeloma.org; Other great org, seems more focused on trials, new drugs and legislative changes

#5 - look at other questions on Y-A! (99 of them) to see if there are any other things.

6# - fight fight fight

Good luck,

Jewells
36 months and still here
(YES - 3 years since Diag today !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! )

Here are some nice overviews:

http://en.wikipedia.org/wiki/Multiple_my...

http://www.mayoclinic.com/health/multipl...

My Dad had it and it can be very painful and frustrating, for the patient as well as the family. Here is a link to the American Cancer Society. You can also look up drug trials there too. Best of luck to you all.
http://www.cancer.org/docroot/CRI/CRI_2x...

Tags

　　Myasthenia Gravis 　　Muscular Dystrophy 　　Muscle Strain 　　Muscle Disorders 　　Mumps 　　Multiple Sclerosis 　　Multiple Myeloma 　　Multiple Endocrine Neoplasia 　　Multiple Births 　　Mucopolysaccharidoses 　　Mucolipidoses 　　MRSA 　　MRI Scans

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