Multiple Myeloma - Family Support Group/Chat Room Needed?

My husband was just diagnosed with MM. I am searching for somewhere on the computer to chat with someone in the same situation. Does anyone know of a site that will help me at this time?

You can try the ACOR MM ListServ, join the list and you should be able to communicate with MM:

http://listserv.acor.org/archives/myelom...

The Multiple Myeloma Research Foundation
http://www.multiplemyeloma.org/

International Myeloma Foundation - You can find local MM chapters too
http://www.myeloma.org/

DMOZ Directory: Multiple Myeloma
http://dmoz.org/Health/Conditions_and_Di...

Good luck!

I am not sure how I came across this question because I never look at them, but I felt like I needed to share with you. My mother was diagnosed with MM in January of 2000. The doctors told us that the survival expectancy was 3-5 years for this disease. My mother passed away last night at 6:35 after being very ill with the MM for four weeks. Please do not think that I am telling you this to upset you. I am sharing this with you to let you know that no matter what they tell you, the only person who really knows is God! Your husband can live years longer than they think he can.

The thing that helped my family most was getting involved with the Cancer Society and specifically with Relay For Life. We have interacted with so many wonderful people that have fought cancer. MM is not that common so I have only met two people in my area with it, but it didn't matter if it was the same type, they still fight the same battles.

Hi,

Sorry for your diagnosis; one of the most important things is to KNOW your cancer as much as possible - understand where he is in the diagnosis and what his "numbers" are. MM is a complicated and varied cancer - every person has different problems and symptoms. It is not like other cancers - where you have a "playbook" and everyone (practically) gets treated with the same protocol.

We (yes we), have an active on line group:

http://www.myeloma.org/main.jsp?source=m...

or call the IMF for more information:

our toll free hotline鈥攕taffed by trained specialists鈥攁t (800) 452-CURE (800-452-2873) in the US and Canada between 9 am and 4 pm PST;

Depending on where you live, there may be an active support group; I found it helpful to sit and talk to people that have already walked that path. (IMF has a list of these also).

There are about 60 question on Yahoo answers - might want to read some of them for more information (search on Myeloma).

One of the most important things is; many of us think it it THE most important; see a doctor that is a SPECIALIST in Myeloma. It is changing everyday and with all the new procedures and drugs comming out; you need someone that is uptodate.

Good luck, maybie i will see you at our meetings,

Jewells
34 months and still here