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Homocystinuria (HCU)? |
Hi, I am mother to a gorgeous baby boy with a condition called Homocystinuria. Im looking for contact with individuals with this metabolic disorder. Not a lot of people seem to realise how easily this can be managed, and the internet is full of gloomy articles that are just not true. My Bub is the only baby in Australia with this condition, so joinning a support group isnt an option! http://www5.doh.wa.gov/EHSPHL |
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