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Does anyone else have marfan syndrome? |
i was just wondering if there is anyone else who has marfan syndrome in their family. its an herited disease that has alot of complications including a weak heart and lungs,brital bones,long fingers and toes and makes you tall and have a slender body build. my partner and 1 of 3 sons have it. if anyone would like to share their experance of having it in their family i'd be grateful. You are not alone, Abraham Lincoln had it too! ME and our Yahoo chat group. PLZ contact me! |
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no, the pressure gradiant changes can lead to an aortic tear. You need a low stress and low physical duress type of job. Any desk job will work ...This is an extremely personal issue, and I do not envy you at all! Have you contacted the National Marfan Foundation for information? I also have Marfans (3rd generation), and I decided at a youn... You need to talk to your doctor and ask for opinion.The following answer is not a medical advice. I am not responsible for any injury resulting from the words below. Patients with Marfan syndrom... It is caused by a defect in the gene. The problem is in the structure of fibrillin (protein). I once heard it explained where it should say Sam ate eggs but would come out Sama tee ggs, etc ... Hello there! I want to address you question on several levels, first the issue of being Marfan's. Yes and no about it being inherited, 25% of people with Marfan's Syndrome are spontaneo... I will be honest, and tell you I don't know much about creatine. I also have Marfan's and I can tell you it is a life long battle. Is your pain muscle spasms? If so I suggest you talk... Hi Rachel. There is a trial going on now with the hopes that Losartan will prevent a lot of the problems that are Marfan related. Other than that the standard treatment is the use of Beta Blocker... I love seeing intelligent answers like the ones you have received so far! Many Marfs have a difficult time gaining weight, at least until they reach middle age! My suggestion (I am a Marf) it to ... |
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