Could you please share some Marfan Syndrome support forums for me?

I have many questions, mainly about random things that I've had since birth or a little kid that would be interesting to know if there is a connection.

ex. would have a "mottled skin" appearance indicate heart problems? I have both. the mottled skin has been since birth

and why did my heart just now show signs of disease? I've probably had my heart listened to over a hundred times in my life, and I've even been to a specialist when I was around 16 because of high blood pressure and blackouts.

thanks for any info

because I was diagnosed by doctors silly

anyone got any message boards where I can talk to people with first hand experience?

I am trying! At least I think you are the same person! If not contact me ASAP and I will see about etting you into one or both of our Marfan Chats! If you are the same person we just don't seem to be on-line at the same time! Marsha is looking forward to meeting you! Can you be on-line tomorrow (Sunday) around 7 pm Eastern time (or later)? We are good at answering questions!
Mottled skin is not indicative of a heart condition. I was diagnosed at age 2 and my heart did not become an issue until I was 37! Same with my sister. Do you have Mitral prolapse? Very often, if unchecked that can cause blackouts, and anxiety attacks
Marfans is a degenerative condition, that is manageable with medication and by monitoring your activities.

why do you think you have marfan?

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