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HOw many cases are there of Marfan syndrome? |
HOw many cases are there of Marfan syndrome? Conservative estimate is 60,000 people in the US have Marfans Syndrome. They are telling us that apx 1 in 10,000 have it. But I think that is based on KNOWN cases and many more go undiagnosed until it is too late. You hear about athletes dying of "heart disease", especially basketball players. But they don't bother to tell you what kind of heart disease, it is my belief that 9 out of 10 had a spontaneous aortic dissection. Marfans does not discriminate by sex, race or any other factor. It is pretty equal across the board, male/female, caucasian/people of colour, etc. I am a 3rd gen Marfan. It can be deadly, even with preventive treatment. If you have any questions I could answer, please feel free to contact me. It is a common condition. By far there are no known serious complications arising from it as there is available treatment, such as surgery and braces. It roughly affects more females than males in general, though many cases can be deemed as minor. It's difficult to answer, as Marfan syndrome is diagnosed by mainly by a process of elimination, but must include certain aspects/characteristics common to all known sufferers. |
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Those of us that have it often refer to it as Marfs or MFS. Don't know of any other names tho some have called it Lincoln's disease. ...Here are a series of pictures of persons with marfan syndrome: ... Two of my Grandsons have Marfan. I first went to ask their doctor about the fact that they were tall, and had bad posture. He discovered they have a twisted spine that causes the stoop, and they ... The Marfan syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and develop... Try to find a marfan clinic if one is close to you. NMF has a list they will email you. You can request it on their website marfan.org or by calling them at 800-8Marfan. There is a lot of inform... Have you considered Ehler-Danlos or Lowes-Dietz? Or it could simply be a genetic anomaly. Have you ruled out Marfan's Syndrome? ...its autosomal dominant ...Children with Marfan Syndrome can exhibit and/or have adhd. Work with your aea to be sure your child is getting adjustments needed based on their symptoms. For instance, if has eye problems make ... |
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