Does anyone know anything about Marfan Syndrome?

I know a little, but I really don't need any cut and paste answers. My best friend has it and I wondered if there were support groups for the friends of people with it, not just for the family members.

I DON"T NEED CUT AND PASTE ANSWERS!

The Marfan syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and development. In the Marfan syndrome, the connective tissue is defective and does not act as it should. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs.

First of all, I'd like to take my hat off to you for taking an interest in your friend, and wanting to know more about what he/she deals with on a daily basis. It's refreshing to see.

There are some online groups that might be able to help you understand it a little more. One right here on the Yahoo! group servers at http://health.groups.yahoo.com/group/mar... . The http://www.marfan.org/nmf/index.jsp site is also loaded up with useful information and the UK version at http://www.marfan.org.uk/ has an online forum that you might want to get stuck into. The Canucks also have one, it can be found at http://www.marfan.ca/ .

There are plenty of places online that might be able to help you a little better than anyone on Yahoo! answers might.

Here is a page that links to many sites, Marfan Syndrome related.

http://www.google.com/Top/Health/Conditi...

Good luck. =]

Tags

　　Medicare 　　Medicaid 　　Measles 　　MDMA 　　Mastectomy 　　Marijuana 　　Marfan Syndrome 　　Maple Syrup Urine Disease 　　Manic-Depressive Illness 　　Managed Care 　　Man-Made Disasters 　　Mammography 　　Mammaplasty

Related information

Recommendation for those who have marfan syndrome?

Try to find a marfan clinic if one is close to you. NMF has a list they will email you. You can request it on their website marfan.org or by calling them at 800-8Marfan. There is a lot of inform...

Besides Marfan's syndrome, what else could a high arch pallet be a sign of?

Have you considered Ehler-Danlos or Lowes-Dietz? Or it could simply be a genetic anomaly. Have you ruled out Marfan's Syndrome?

...

Is marfan's syndrome dominant or recessive?

its autosomal dominant

...

Marfan's syndrome?

Children with Marfan Syndrome can exhibit and/or have adhd. Work with your aea to be sure your child is getting adjustments needed based on their symptoms. For instance, if has eye problems make ...

Where (what choromosome) is the defective gene located if u have marfan syndrome??? :~D?

Marfan syndrome is caused by mutations in one member of a pair of genes called the fibrillin genes. These genes are located on chromosome 15, one of the 23 pairs of human chromosomes. combination w...

What chromosome has been determined to carry the gene for Marfan syndrome?

"Marfan syndrome has been linked to a defect in the FBN1 gene on chromosome 15,[6] which encodes a glycoprotein called fibrillin-1. Fibrillin is essential for the formation of the elastic fibe...

Has anyone has a collasped lung due to marfan syndrome?

Marfan syndrome is a genetic connective tissue disorder often characterized by unusually long limbs, great stature or long toes or fingers in proportion to height. The disease may also affect numer...

What exercise is good for people with marfan syndrome?

...