Recommendation for those who have marfan syndrome?

Try to find a marfan clinic if one is close to you. NMF has a list they will email you. You can request it on their website marfan.org or by calling them at 800-8Marfan. There is a lot of information on their sight. If you are from another country they have links for several other associations and a world association.

If you are not close to a clinic, find a gp who is willing to work with you and listen to you. Many won't know a lot but some are more willing to learn and help work through your questions. The very least you should do is have a yearly echo in coordination with a cardiologist visit, and a yearly visit to an opthamologist. If there are skeletal signs, especially scoliosis or curvature of any kind of the back see an orthopedist. These are the main systems affected but every part of the body can be affected.

If this is completely new to you, I suggest looking at marfan.org under local contacts and many areas have local meetings and people who can tell you doctors they see.

Online, there are many support groups depending on what you are comfortable with there are forums, posting boards and chat groups specifically for marfan and related disorders. If interested I can help you find most active and give best information usually. They are great as you can ask anything and get first hand experience.

Overall don't ignore anything, from teeth (braces), sprains, headaches, etc. Most physical problems lead back to marfan.

Recommendation regarding what? You don't say what you want to recommend about Marfans.

If you have Marfans you are at greater risk for connective tissue problems. Avoid contact sports. If you lift things above your head, make sure you exhale as you do so (to keep from getting a pneumothorax (hole in the lung)), and get checked to make sure that you don't get an aortic aneurysm (you're at higher risk than most people).