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My daughter has maple syrup urine disease, she is 19? |
She is currently on a liver transplant list, it will be a year at the end of the month. We will be staying in Pittsburg Pa for up to 3 months, she will also be giving her liver to someone else. I have been tryin to fund raise. Anyone have any ideas, everytime i come up with something, it gets shot down. Thanks I am exceedingly well-versed in medicine and Make stuff. Set up donation boxes around town. Bake sale. Ask the church? Good luck I am sorry i do not have any idea but I will be praying for your daughter. Good luck with whatever come your way. who are you kidding? don't try to do it alone- contact st. jude. set up those donation cans in local stores,have garag sales, contact the local paper, and local news station plus get a girls scout/ by scout troop involved b/c evry year they sell candy and stuff and ask the rfits to be sent toward your daughter. I also had never heard of this disease so I looked it up. Reading about it made me aware of how serious a disease it is. I think you have done something you aren't even aware of and that is making others aware that this is actually a disease. Have you tried SSI? |
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| Medicaid Measles MDMA Mastectomy Marijuana Marfan Syndrome Maple Syrup Urine Disease Manic-Depressive Illness Managed Care Man-Made Disasters Mammography Mammaplasty Malignancy |
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