mcrh.org
*Home>>>Lymphoma

Lymphoma?!?!?


Has anyone out there been diagnosed with lymphoma. My boyfriend has just been recently diagnosed with lymphoma. We are still in the dark as to what stage and which type it is, but we will find out. I was wondering if anyone can give me insight for what is ahead for us. How did you feel? What treatments did you go through? How did you feel going through them? I really want to support him through this and was just wondering what he might go through. Granted, I know not everone is the same, but any insight is good. Thank You.

I am a NHL survivor (Non-Hodgkins Lymphoma)
I went thru 1 year of treatments, no radiation. First you have to find out what stage the cancer is, and what your doctor recommends for a treatment. There are many options out there, ck out the website: Leukemia Lymphoma Society. Good info there.
Hang in there, this is something that is curable.

here are some links to info on lymphoma...

Adult Hodgkins
http://www.cancer.org/docroot/CRI/conten...
http://www.cancer.org/docroot/CRI/CRI_2_...
http://www.cancer.gov/cancertopics/types...
http://www.leukemia-lymphoma.org/all_pag...
http://www.leukemia-lymphoma.org/all_pag...
http://www.nci.nih.gov/cancertopics/type...
http://www.cancer.gov/clinicaltrials/res... (results of Hodgkins clinical trials)
http://www.clinicaltrials.gov/ct/search;... (Hodgkin鈥檚 clinical trials)
http://www.multiplemyeloma.org/clinical_... (clinical trials frequently asked questions)
http://www.multiplemyeloma.org/clinical_... (basics of cancer clinical trials (need powerpoint)
http://www.multiplemyeloma.org/clinical_... (cancer clinical trials in depth (need powerpoint)

Adult Non-Hodgkins
http://www.cancer.org/docroot/CRI/conten...
http://www.cancer.org/docroot/CRI/CRI_2_...
http://www.cancer.gov/cancertopics/types...
http://www.leukemia-lymphoma.org/all_pag...
http://www.leukemia-lymphoma.org/all_pag...
http://www.nci.nih.gov/cancertopics/wynt...
http://www.cancer.gov/clinicaltrials/res... (results of non-hodgkin鈥檚 clinical trials鈥? pages)
http://patientrecruitment.nhlbi.nih.gov/... (stem cell trial to treat non-hodgkins lymphoma)
http://www.clinicaltrials.gov/ct/search;... (non-hodgkin鈥檚 clinical trials)
http://www.multiplemyeloma.org/clinical_... (clinical trials frequently asked questions)
http://www.multiplemyeloma.org/clinical_... (basics of cancer clinical trials (need powerpoint)
http://www.multiplemyeloma.org/clinical_... (cancer clinical trials in depth (need powerpoint)

Bone marrow transplants
http://www.marrow.org/PATIENT/Undrstnd_D... (National Bone Marrow Donor program鈥cute lymphoblastic leukemia)
http://www.marrow.org/ABOUT/Connecting_P... (about the National Bone Marrow Donor program)
http://www.marrow.org/PATIENT/Undrstnd_D... (clinical trials by type)
https://web.emmes.com/study/bmt/ (Bone Marrow Transplant clinical network)
http://www.marrow.org/PATIENT/Plan_for_T... (financial assistance for bone marrow transplant patients..ie leukemia,etc)

Nutrition and Support for cancer patients
http://www.cancer.org/docroot/MBC/MBC_6.... (nutrition for cancer patients)
http://www.cancer.org/docroot/MIT/mit_0.... (supporting cancer patients)

3 books on disease symptoms and treatments

you could also get these books on ebay or amazon or a half price book store. (last two are very similar)..
1.Oxford Handbook of Clinical Medicine
2.Handbook of Diseases (Lippencott)
3.Professional Guide to Diseases (Springhouse)

Don't panic! You need to wait until the Doc gives you the type, stage and so on. It could be 'smoldering' in which case they will leave well alone for ten to twenty years.

Just take one step at at time and te first is wait for the doctor to tell you exactly what is wrong. Depending on the diagnosis the treatment varies. I had Hodgkins Disease which is a form of a lymphoma and had just chemo but everyone is different. Just being there and being a friend no matter what makes the biggest difference. Its amazing what a hug or encouraging note can do. I got lots of them and at the exact moment I needed it. Once you get a diagnosis and know what is going on if you have any questions you can ask me. Its been 17 years but i can provide some info. You can find me at doryswiper @yahoo.com.
good luck!

I had Hodgkin's Lymphoma, stage 4. It was all throughout my lympth nodes especially neck area but including armpits, groin area, also was in my liver and stomach. I had to undergo many tests, gallium scan, cat scan, muga scan(to see if heart is strong enough for certain chemo), etc., I know there were more but forgot the names. I had a port put in my right arm (they put it under skin to use during chemo treatments and drawing blood). I ended up going through 3 of them because my body kept rejecting them and they couldn't use them (If they can't draw blood from it then they wont do chemo at that time). They wanted me to go through a 4th time and I told them they were crazy so I made them use my veins (I had only a few more treatments, they prefer not to use veins because veins can harden and chemo can spill into veins and burn a little but I didn't have that problem. I had 4 drugs at a time every other week, they were ABVD (Adriamycin, Vinblastine, I forgot what the other 2 were), and I went for 12 treatments (6months). The chemo made me very tired and weak and extremely nauseaus. The only time I was happy was when I was sleeping because that was the only time I wasn't sick or in pain. Please have patience with him because he will need you, you sound like a wonderful girlfriend, and the two of you will get through this together.

Calm down. I know that's hard, hon. Modern medicine has great treatments out there. Lymphoma is a common type of cancer and much is known about it. Just be there for your bf, and talk to his doctor when you can. Chemo is rotten, but it will pass. It's been 3 years for me and I'm mostly back to normal, except for weight gain [due to prednisone].
Here's where you'll find the best info on Lymphoma:
http://www.leukemia-lymphoma.org/hm_lls
Best wishes

Tags
  Malaria   Magnetic Resonance Imaging   Magnesium   Mad Cow Disease   Macular Degeneration   Lymphoma   Lymphedema   Lymphatic Diseases   Lymph Nodes   Lyme Disease   Lupus   Lung Transplantation
Related information
  • Lymphoma??

    mine were hard

    ...
  • Lymphoma..?

    Get a second opinion!!!! When they found my cancer, I had a swollen lymphnode in the groin. Because it got so large, it caused my leg to swell...which moved up the right side of my body, to my a...

  • What does Lymphoma do to the small intestine?

    Some symptoms of lymphomas are night sweats, fever, itching and swollen lymph nodes. The type of lymphoma impacts the treatment. Usually chemotherapy is used and sometimes radiation is used as well...

  • Melanoma and lymphoma?

    Your mother must have misunderstood her initial melanoma diagnosis staging. Stage 4 melanoma means melanoma that has metastasized to both the lymphatic system and to other organs of the body. Stage...

  • Vomiting with Lymphoma?

    Vomiting is not what I would call a common symptom of lymphoma but since people with lymphoma can experience the disease differently, depending on the type of lymphoma and potential tumor location,...

  • Is this lymphoma?

    Why didn't the doctor take a biopsy? The only sure way of knowing if a suspicious lump is cancer or not is by doing a biopsy, anything else is just guess work. Your life is far more import...

  • Lymphoma Possibility?

    It honestly sounds more like stress to me. Here's some symptoms I would be real concerned about: itching, night sweats [soak the sheets type], weight loss. If you have swollen nodes for some...

  • Lymphoma and reducing chemo doze due to low WBC?

    I was neutropenic while on chemo [and spent 8 days in the hosp]. I was started on Neulasta and Arancept at that time. Stay in close touch with his doctor, and possibly consult another doctor. It do...

  •  

    Categories--Copyright/IP Policy--Contact Webmaster