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Has anyone here ever heard of a thing called "LYMPHEDEMA"? If so, is there a place that treats it?


I'm disabled and I have it and I haven't been able to get treatment for it. I am on S.S.I and I have medi-cal. No place takes Medi-cal, so I have to just live with it. Please help.

I am a physical therapist with a certification in lymphedema management. A local PT in your area who treats people with this type of condition would probably be a good place to start finding a physician who treats this problem...they probably know who in the area treats people with this condition. One of the leading experts, Dr. Stanley Rockson of Stanford University is completing some very interesting studies about lymphedema.

Medi-cal is the public aid system in CA right? I've included a link to some physical therapists in your area who might be able to point you in the right direction. Most likely, faith-based not-for-profit hospitals will be the ones most likely to accept public aid. My clinic does, but we are not in your area.

So, no, you don't have to "live with it." I have treated many people on the public aid system for this disorder. While it is tricky to find A: a physician who accepts this payment and is familiar with the disorder and B: get into a theraputic program of complex decongestive therapy C: get assistance for the purchase of compression garments, it certainly is possible and there are agencies willing to help people in your situation.

http://en.wikipedia.org/wiki/Lymphedema

Here's a listing by state:
http://www.lymphnet.org/resourceGuide/tr...

My aunt has Lymphedema and she found a doctor that she swears by, but I checked the list and didn't see the doctor listed. that tells me that there are other places that could help you beyond what is listed.

If I were you, I'd grab a number and start calling to see what is available near you.

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