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Can someone with lyme disease tell me of there experience with lyme?


I was diagnosed with lyme and the only medication I had was two weeks of doxycycline. I understand that there is more to the treatment than that. I have so many symptoms of lyme and even some of the coinfections. But my doctor just shrugs me off .I have an appointment with the infectuous disease doctor, but it's a month away. And I don't know of any llmds in San Diego.

the only thing i know of is my friends girlfriend had it about 8 yrs ago and she did feel like she had the flu. she went to the dr and he said it was nothing.....get some bed rest etc. but a couple of months later she had problems walking like leg cramps, pain and some swelling. later her eyes started getting bad. long and short of it is she ended up using a walker and she lost some vision in her eyes. this might not be what you want to hear but it is true. at this point in her life right now is she can see much better and she walks fine now. took yrs to get better so you do what you have to do to get the answers you are looking for. GOOD LUCK TO YOU...

man! i almost had that! im really sick too! PLEASE email me- my mom knows ALLLL about lymes, because we do that kinda reasurch at my house because im terribly ill as well. i just dont know whats wrong. but we know al about it please email me!

I recommend you join the "California Lyme On-line Support Group"--it's a Yahoo group. Here's the link:
http://health.groups.yahoo.com/group/Cal...

There are many people from San Diego as part of this group. I'm sure one of them could recommend Lyme docs in your region. Also let you know about local support group meetings. And answer other questions. Good luck!

I DONT EVEN KNOW WERE TO START .......IT WAS HELL FOR ME AS A 21 YEAR OLD......I HAD IT ALL FROM DOUBLE VISION....
FEEDING TUBE........
WHEEL CHAIR..........
MINI STROKE.............
LYME MENINGITIS....
LYME ARTHRITIS.......
THE LIST GOES ON.................PLEASE GET STURN WITH YOUR DOC.....TELL HIM LIKE IT IS .....DONT WAIT TO LONG......2 WEEKS IS NOT ENOUGH .....I HAD LYME TWICE.......BECAUSE THEY NEVER GOT IT ALL THE FIRST TIME.............HOPE THIS HELPS A LITTLE

GOOD LUCK BKD198221

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  Macular Degeneration   Lymphoma   Lymphedema   Lymphatic Diseases   Lymph Nodes   Lyme Disease   Lupus   Lung Transplantation   Lung Diseases   Lung Cancer   Lumpectomy   Low Vision
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