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Lupus diagnosis/testing?


In September I had a routine blood test that showed a "possible indication" of lupus - a huge and shocking surprise. My GP said repeatedly not to worry, that lupus is hard to diagnose for a number of reasons. He gave me the name of a rheumatologist, for more advanced blood work, but also recommended that I work on losing weight and getting my pre-diabetic blood sugar down, then being re-tested in the original fashion after three months, to see if this and a few other things that had shown up "cleared up on their own" as a result. Three months later, I am wondering if it is just as well to go ahead and see the rheumatologist for the more advanced blood test. The only thing is, I have absolutely no symptoms of lupus at this time, and in my entire life, have only had two! When I read about the condition, I just don't see how I could have it, but at the same time, I understand people can be asymptomatic for years, even decades. I'm puzzled and wonder how concerned I should be.

I had lupus for 17 years went untreated symptoms can be masked by other things in your life. Went through so many years of problems talked to the Rheumatologists . 2hrs and they told me what was wrong. It is something you will have to get used to. but if you have it dont worry. I am a survivor I went untreated for 17 years, you shall survive. Dont listen to all the horror stories people tell you go to the Lupus website, your Rheumatologist will become your best friend

There is a Lupus Support Group should you need it.
"Google" for details of how to contact them.
Go and see the rheumatologist (usually the Consultant who knows more about Systemic Lupus than any other) and get the test done.
Then, at least you can start working on your future, and there is one, believe me.
I am one of the lucky ones - I have discoid lupus but have a good friend with Systemic. Surprising how many of us are out here.

In July I tested positive for Systemic Lupus and had serious side effects to my kidneys due to the systemic lupus. I am in treatment for the kidney issues, and will be for 18 months, but my blood work for lupus is showing up clear now. Looking at my blood work, you wouldn't for the most part know I had Lupus, except for one or two small triggers. Its a very hard disease to diagnois, and a lot of the triggars that would alert the doctor to Lupus are in your bloodwork, so you would not even know if you were systematic for the most part. If I were you I wouldn't be to concerned. If symptoms start to appear, the doctor will treat them. But honestly, there is no cure and if you had the disease, but no active symptoms of it, I do not think they would do anything to treat you anyway at this moment. So, if I were you no need to worry at this moment. Rejoice in the fact your symptoms have cleared up.

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