Adult with Craniosynostosis? I'm living the nightmare .?

I'm 28 ...and I never knew what I had till I finally got depressed enough to find out. All this time I thought I was an alien or adopted because my forehead comes out instead of sloping up. What I have is "craniosynostosis" ..and it's a nightmare. I don't look right .. I feel disconnected from everyone and everything in this world and when i'm out and about..all I do is try to look for someone like me ..with the forehead coming out. I thought I was truly alone in this world because everytime I go out..and I live in nyc with millions of people,I'd see NO ONE who has this BIG FOREHEAD COMING OUT like a big bump. My question, is there support groups for adults living with Craniosynostosis? And parents. if you think your child has this..GET HELP FAST. I'm 28 and have had no relationships because what girl would want a life with a big forehead freak.. I have no kids..no job...I hide behind a hat and can't go anywhere without it. And I lost my hair due to the stress. Now I look even worse

It would be nice to have kids but when I think about how depressed I was and the contant teasing with this big forehead.. I wouldn't want anyone to go thru what I went thru. Every site I go to talks about kids with this problem.. I'm a grown man who had been living this night mare for 28 years and have been alone because of it. Again , if you're a parent of a child with Craniosynostosis ..do whatever it takes to get the kid some help...otherwise .. he'll grow up alone , disconnected and mad at the world. People commit suicide for a number of reasons ...but I have yet to see anyone with worse problems than a person who has a biiig forehead that comes out like a lump and now has lost his hair due to the stress. I'm gonna be alone for the rest of my life and that doesnt make me feel good at all. When I meet people wearing my hat..i'll never show them the real me with the big forehead so I can never really go anywhere due to the fear i'll have to take off my hat and embarrass myself.

Sweetie it sounds like you have given up hope...no wait you have. You dont know that no girl will be with you because of this, there are some girls out there that dont look at the physical outside, that look on the inside, and yes I know what you are going to say, I havent met any yet, well you know what you just have, I dated a lot of guys with a lot of problems, and it didnt work out not because of their disabilities but more like the relationship didnt work out because we had different views on things, normal couple things, it sounds like rather than asking a question, you are trying to reach out, vent if you will, trying to see if someone will respond to make you feel better, you are never going to feel better until you accept who you are and learn to love yourself. God made you the way you are, not to hide behind a hat, but to proudly carry your weight around this earth. I think instead of looking for sympathy and answers if that is what you are truly looking for on here, you need to talk with someone that would understand truly what you are going through, why dont you try talking to a therapist, you are obviously depressed. And no it does not mean you are crazy, all it means is that you need some help with your self esteem. You are right no one knows what it is like to be you but you know what no one knows what it is like to be me, I am 21 and basically disabled, I have the back of a 70 year old and can't go to clubs or out and have fun because I cant do anything that other people do because of my back, I have sought treatment for depression because of it and I have been dealing with this since I was 14. I may not know what it is like to have what you have, and you dont know what it is like to have what I have but you know what? In a way we are similar, we both have things wrong with us that we hide from the world and both can be self-destructive at times, but you want to know the one difference between us? I have accepted my fate, and even though I cant work and cant hang out with my friends and do what they do I have come to terms with that, and it is time you pull yourself up by your bootstraps and accept that you ARE different from other people, but you know what? It doesnt make you any more or less of a person, like any of us, you are human and you need love just like the rest of us. Point Made. And I hope the point was gotten.....I really think you need to get some help....talking about suicide just because you have a disability???? Instead of focusing on finding one frickin person with this problem why don't you focus on you the person with this problem making a better life for yourself!! you may think your life is over but you just wait and see....life is nothing when you do nothing, life is what you make it, and if you make it miserable then that is on you. The reason you only have 2 answers to your question is because you are seeking attention, sympathy, empathy. You need to stop and accept yourself for who and what you are and get off this poor me crap

Maybe you should look at life differently, you can walk,talk,and function.There are many here among us who don't have even that going for them.