Information about rare diseases?

Does anyone have information about rare diseases and/or disorders? I'm interested in learning about disease, genetic disorders, birth defects, etc., that aren't detected too often. I'm not in the medical field, nor am in considering going into it, but I'm curious about things that don't get discussed often. I'd also like to hear stories from people who have a rare disease or disorder and the treatment, symptoms and things you've had to deal with. Thanks, and I give Best Answer points!

http://www.rarediseases.org/
http://www.nlm.nih.gov/medlineplus/rared...
http://www.hon.ch/HONselect/RareDiseases...

If you get the Discovery Heath channel check out the show mystery diagnoses. Its a show all about people with rare illness and what they went thought to find a treatment. It's quite intresting.

you sound like a hyperchondriac in the making.

http://www.geneticalliance.org/
http://www.genetests.org/servlet/access?...

www.rarediseases.org is good too, but someone already listed it. Good luck!

Tags

　　Lesbian Health 　　Leishmaniasis 　　Legionnaires Disease 　　Legg-Calve-Perthes Disease 　　Leg Disorders 　　Leg Injuries 　　Learning Disorders 　　Lead Poisoning 　　LDL 　　Latino Health 　　Latex Allergy 　　LASIK 　　Laser Eye Surgery

Related information

Did i have a minor eating disorder?

Yes-you had an eating disorder.

...

I am bipolar. Those of you who also have this disorder have you experienced?

I am not bi-polar, but I have lived with people who are (in fact, I'm currently married to one). Remember that bi-polar is characterized by severe mood swings caused my chemical imbalances...

Dreams while on medicine; do you know the answer?

i know exactly what you mean. it has got to be the medication. i have had the exact same thing going on now for the last few months while i have been on welbutrin and paxil. i wake up in the morni...

Eating disorder recovery/therapeutic websites?

...

Is it possible to know which partner transmitted disease?

It is as impossible to tell from a test which partner was first infected as it is to guess if the chicken or egg came first. Before anyone is treated for an STD, a lab test is done to detect wheth...

Has anyone got avoidant personality disorder? How have you learnt to cope?

I feel like I have a schizoid personality disorder, which means like, I tend to not care for and avoid social relationships. I'm not sure either, it's all self-diagnosis, which can cripp...

Anxiety disorder question?

I have a anxiety disoder! When it first developed it CRIPPLED me! I spent nearly 3 years hiding inside, scared to go out etc! I tried all the mids and therapy and shiz and it just got worse! I did ...

General anxiety disorder alternative medicine?

I know of this emotional acupuncture type method that you do on yourself. It is phenomenally successful, but it does require some persistance and probably doing some work with a practitioner to ...