Has anyone had a child diagnosis with Kawasaki disease?

My son was diagnosis and rec'd treatment for kd in january. We had 2 follow up ECHO & EKG, and the dr said he was in good health, we would have to do additional testing in one year. Then last night the dr office left a message on our machine telling us that the cardiologist are requesting an appt for our son. I have approx 1 hr before I can call and see what is going on, but I am so stressed out. I thought we were through this, that I wouldn't have to worry about the side effects of this disease anymore. My son is only 17 mo. old, and I don't know if we can handle much more. I am so scared. If anyone has had any experience with this please help me understand it. Thank you. PS Please don't degrade this by talking about motorcycles, I realize it has the same name, the jokes won't help. Thanks I appreciate your compassion, its a horrible disease.

First of all....calm down. It may be fine. They may just want to do some more testing. Your son can tell that you are upset and therefore you will upset him. Babies are sensitive to these emotions.

Secondly.....Put your faith in GOD. He will take care of you. He won't ever give you more than you can handle. Just continue to pray for your son and ask GOD to guide the Doctors and You to do the right thing for your son.

It will all be ok. Email me if you would like to talk.

I will keep him in my prayers. God Bless

It is a nasty disease those poor kids have to deal with. Wish you all the luck, hope the dr find out what is going on

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