Kawasaki's disease; Any parents out there who have had to take their child for tests on their heart?

I have to take my daughter for heart scans next week to check for any lasting effects of kawasakis disease which she had in December. She was diognosed too late for treatment and we have been told that there is a very slight risk that it could have damaged her heart. She seems pefectly healthy now, but it 's nagging in the back of my mind. Has anyone had children with the disease or had to take their child for similar tests? I've more or less convinced myself that everythying will be fine, but I would like to hear from anyone with experience.
Any answers most appreciated.

My son was 5 months old when they diagnosed his Kawasaki - that was SO SCARY! He is almost 9 years old now. Fortunately, his was caught on day 5 of his symptoms, which was the first day they could diagnose it. He was treated with immunoglobulin & literally cleared up overnight.

You will feel much better after your daughter sees the cardiolgist. The concern is that the disease could cause the arteries surrounding the heart to weaken. My son had to take baby aspirin for 1 year & also had to go to the pediatric cardiologist. They did an ekg and an echocardiogram (which is like an ultrasound of the heart - pretty neat to watch, actually.) The good thing is they can tell you right away if they see a problem or not. They had us bring him back yearly, which we did 2 more times. But it was far away so for his 3rd checkup, we found a pediatric cardiologist MUCH closer to home. This one was surprised they has us keep coming back. He told us that if the tests are clear after the1st year - they usually release them from care. He did recommend that we have him get baseline cardic tests for his medical records when he is in his late teens-early 20's, since they really don't know what could show up later in life.

You didn't mention how old your daughter is, but she does need to remain pretty still for the ECHO. You might want to double check if they plan to sedate her at all - because if they think they are going to do that, they aren't going to want her to eat much, if anything. (The first time I went, they didn't tell me anything about that & then they were mad at ME because he had eaten!)

Good luck!!

Since your daughter is 5, she is likely to be interested in the whole process. Maybe the doctor will print a picture of her heart for her - what a cool show & tell! Again, good luck! Report It

Sorry to hear that your dughter has had kawasaki s.My daughter had this when she was 3.she is 8 now. She had a very severe illness which was undiagnosed for weeks. And then when she was eventually admitted she was very ill for several weeks in hospital.She had to have huge doses of aspirin in decreasing amounts for months and heart scans and ecg's .for a year after. It was a worrying time for us but Im pleased to tell you that she has been left with no lasting damage physically but was needle phobic for several years!
I hope all is well with your little one.please contact me if you need any more support or advice. kind regards

Kawasaki's disease? I thought it was a make of motorbike :s Hope its not serious, good luck

Usually all heart problems go away in five or six weeks,with no lasting damage,i sincerely hope this is the case with your little girl,sometimes coronary heart damage may persist however.
An arrhythmia or damaged heart muscle can be detected using an electrocardiogram.An echocardiogram is used to look for possible damage to the heart or coronary arteries,both are painless.
There is a support group for Kawasaki disease,you can contact The Kawasaki disease foundation,to help you through this difficult time,and talk to others in a similar situation.Good luck with the tests.xxx