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Severe iron deficiency anemia treatment in special needs children?(running out of options!)?


My daughter is 4 1/2 and we have tried iron rich food, iron supplements, everything PO that we could, we moved on to IV iron but after several treatments she developed an allergy to it. We just recently tried a different form of IV iron but that had no effect on her at all. Now the docs are telling me that the only option we have left is regular blood transfusion which is very risky. I have been told that whenever I take her in to get a transfusion I must realize that I may not be taking her home with me. I am desperate to find out if there is any alternative that anyone knows of. Anything is better than the reality that I am currently faced with, please help and thank you.

This is a very tough question.

Have the doctors try to premedicate him so that he doesn't develop an allergy? At least in adult medicine, we sometimes premedicate a patient with benadryl and prednisone before giving IV contrast (its a chemical that we inject in people so to obtain a CT scan) if they are allergic to it. So if you premedicate the child, he may not develop the allergy.

What I am curious about is why is he not absorbing or utilizing oral iron supplements? Giving vitamin C with iron supplements sometimes helps with the absorption of iron. Which iron rich foods have you tried? Remember red meats and liver are excellent sources of iron and are easily absorbable. In chinese culture and a few european cultures, cooked blood is eaten.

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