I have HS-Hidradenitis Suppurativa?

I just was diagnosed with HS - hidradenitis suppurativa.

Likely to be in Stage 1 of the disease.

Has no treatment nor cure but anyone else have it or know of someone who has it on what products to use ease some of the pain.

Hi miss Brit!
I also have a condition called Hidradenitis Supprativa.of re-occurring boils/ cysts/abscesses , that are often misdiagnosed as ingrown hairs, herpes, being unclean or over wieght and folliculitis. This is a newly diagnosed skin condition , but there is a lot of info out there.
Here is a link :
http://en.wikipedia.org/wiki/Hidradeniti...

or the HS_USA page is ..
http://www.hs-usa.org/hidradenitis_suppu...


Its better to try to start treatment soon, it can spread over the body if left untreated. These boils can become quite large and painful. Sometimes even lasting for weeks or months , do not attempt to POP them they can then tunnel under your skin and spread all over the body. Most common areas are armpits, groin, binkni line, inner legs, and intimate places and basically anywhere that sweats and rub against clothing. Stress is a big inducer.

There is a support group at MSN

http://groups.msn.com/HidradenitisSuppor...

This is also a link to a PDF of a study in Germany about HS and if it is genetic... I thought it was intresting :

http://www.hs-foundation.org/pdf/2000_Cl...

and a yahoo one, and I am open for questions!
I have had this for 8 years, I was misdiagnosed for a LONG time, It was very embarrassing, painful and scary. I am just trying to help out so you don鈥檛 have to wait as long as I did.

Currently I have 5 , 2 next to each other on my right inner groin. 2 in my upper HAIR area, and 1 med sized on my butt on the panty line, and they do come every week or so. I find that certian foods, not having a regular showering regimen, wearing clothing that irratiates the area.. and STRESS usually are a precusor to getting one.

I also prefer to use NEXCARE bandages.. there are 2 kinds I like for comfort and stay put reasons..
the first is like a clear bandaid.... soft on the edges with a small area of bandage... helps with those buggers when they are on bikni line.. usually stay for me.. or occasionally on my inner thigh for those I like the foamy sponge like ones that are beige in color.. I think they are 3M.

I used to use the HIBICLENS... but There is one bad thing about that... there needs to be SOME bacteria ( good kind) to help battle the bad kind... so if you clean away ALL bacteria.. you are leaving open areas not protected to get infected easily.
Everyone has thier own methods and ways of dealing with this... what works for some may not work for others...
All I know is EVERY SINGLE TYPE OF MEDICATION , I have ever taken for this has built a resistance to it within a month.. so there is NO 1 pill that will cure it. I do agree diet plays a factor in it though.. again open for questions.. and anyone else who may have HS... please add me as a contact via yahoo answers.

I was diagnosed w it many years ago but it went completely away when i gave up sugar & flour and began to take supplements. it was amazing!

Sometimes antibiotics help & sometimes surgery is utilized.

I have it too. I have opted to leave the antiboitics alone (got tired of the monster yeast infections) and not have surgery. Surgrery is no guarantee-- it could could come back in another spot! If I have an episode, I use vicks vapour rub. It helps draw it to a head and dull the pain. I have also known people to use tea tree oil as well. If you are overweight, try to shed some of the pounds. I did and it has work wonders! I also use HIBICLENS. It a antibacterial liquid soap that washes away bacteria. I only use it on my affected area (under my arms) and that stuff is like liquid gold! It can be purchased at any Rite-Aid or CVS.

Make sure you join a support group too. It just helps to know that you are not alone and everyone is willing to share tips on how to manage HS.