My daughter age 2 diagnosed stage IV Hepatoblastoma & hv been on chemo ~ 1.5 yrs. No more drug. What can I do?

She has been receiving treatment from University Hospital in Kuala Lumpur, Malaysia, following the european cancer treatment protocol. The actually completed the available protocol but her AFP is still running around 3.5K. SHe had her lever, and lungs surgery already. She is currently on pallative treatment. Any suggestion for us to help her? She is really cute and lovely

Hi PB

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Cheers

Well, I am sorry to hear that, I am a diabetic, just looking around & I saw your message, I would know more if she was a diabetic, but no, sorry

Inspite of Bush aversion to gene research, it is one of the most advance and promising remedy for people with cancer. Check with UCLA and other research Universities pioneering gene therapy and other novel approaches.

As far as I am concerned, chemo is a shotgun therapy that rarely cures patients... it just kills both cancer and patient slowly.

Also check the internet.

Good luck.

There is a point in which treatment becomes no longer a possibility. I do not know if your child is at that stage or not, only you and her doctors can make that determination. I am very sorry that this is happening to your baby. The first thing I would do in your situation is make sure that every single avenue of treatment has been totally explored. Seek out another doctors opinion if you need to. If you can afford to bring her to the United States there may be treatment options available here that were not available in Malaysia. Check out some of the top cancer research facilities. But, this is only if you are still willing to fight. You must look at your child and determine what is best for her. Look in your heart, I know how hard it is to make this type of decision (I've been faced with a similar decision - it turned out that it was not my sons time to leave this world). When we were first confronted with our sons rare abdominal stage IV cancer we were given the option of pursuing treatment or taking him home. We chose to fight the disease. It has been over 18 months and he has done remarkably well, but there is always that possiblity that we may need to face the reality that you now have. To pursue treatment or to allow this young child to enjoy her life today . . in the present. To make her comfortable and to help her leave this world, much the way you helped her come into this world. These are decisions that only families can make.

Please know that my heart goes out to you as you travel this path. Stay strong. Become informed. Hold your baby and enjoy every single moment with her.

She might benefit from a liver transplant surgery,if the lungs are free of the tumor

Im sorry to hear about your baby but you really need advice from the experts who are treating her.

My entire family had a near death experience with a moldy contaminated home which affected our health to the brink of near death. As a wife & mother of 4 girls, (husband and oldest daughter are both type 1 diabetics) I was frantic to find any help other than the so called "professtionals" who laughed at us, & told us mold only grows on walls, so off to a book store to do research. I truly believe GOD directed me to this book. It was the only one left of it's kind on the shelf, and it was wrapped & sealed shut. This book has changed our life as well as saved a family of 6.
The book----- A CURE FOR ALL DISEASES BY HULDA CLARK. She has an impressive resume, in which at one time she use to work for government funding programs, however, left to start her own practice or actually, findings & thus has helped thousands on their road to recovery. THIS IS A MUST BUY BOOK. SHE IS VERY DETAILED & UNDERSTANDABLE SO WE CAN RELATE TO THE LINGO. SHE'S HEAVEN SENT.
MY FAMILY & I WILL ALWAYS KEEP YOUR ANGEL BABY IN OUR PRAYERS !! GOD BLESS & BE WITH YOU ALWAYS.