Anyone with hemochromatosis?

if you or anyone you know has had this disease and it has led to a liver transplant could you let me know how it went. my mother is going to have one and we are all very worried. I would like to know information like length of hospital stays, recovery time, if youre 100% better... all that stuff. you can email me any information at laceyheald@yahoo.com also if theres any important questions to ask the doctor that we wouldnt normally think of. thank you

Hemochromatosis is a hereditary disease that
causes the body to store excess amounts of
iron. How long a hospital stay is depends
on whether a patient has other medical
conditions besides this one, how far advanced
they were in the disease when they had the
transplant, their age, how healthy they
were before the transplant and many other
factors.
Here is a guide that is very informative on
what a patient encounters who has a
transplant.
http://www.surgery.usc.edu/divisions/hep...

You will notice a big change once the transplant is over...the patient will look like they are
healthy once again, with natural color to their
skin and they will lose the fluid weight they
gained and their minds will be alot clearer.
The best thing you can do is to listen to them
when they talk, be with them for anything they
may need, and help them when they need help.

The things you might need to know after the
transplant is that she will be placed on
anti rejection drugs that have to be taken on
a regular basis, usually twice a day, and she
might need help with all these medication in
remembering what they are and when to
take them. She may also need help with
taking care of pets and children who are at
home. She won't need anything to wear at
the hospital ,or her personal things, until
she is out of the ICU and placed on another
floor. It is a very good idea to keep a
complete medical history available.
On this site:
http://www.geocities.com/jabtcb51/lifepr...
This is a poetry site, but at the bottom of the
page you will see where you can click to take
you to a long form. The form doesn't print out
but it will give you something to follow.
If you can complete all the information on this
form and keep it updated and give it to
each doctor she has and also to the
nurse on the hospital floor where she will
be staying, this will ensure they will know everything they need to know to take the best care of your mom.

This is not an easy thing to go through...but
I will tell you that during the transplant, at
most hospitals, they will have a nurse call
out to the waiting area from the operating
room to let you know how far along in the
operation your mom is and how she is doing.
The operation could last anywhere from
6 to 14 hours. Ours lastest 14 hours...some
have told me theirs lastest 7. We are 4 years
out from our transplant and are doing well.
There are groups on the web in Yahoo that
talk about all situations regarding and they
answer questions there...you can join...it
doesn't cost anything...the one I am in is
known as "Liver Cirrhosis Support"
http://health.groups.yahoo.com/group/liv...

Hemochromatosis is a disease that leads to
cirrhosis of the liver. Cirrhosis of the liver
is the death of the liver cells.

I hope this information has been a help to
you.