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Lyme's Disease?!?!?


For years now, I've suffered with panic attacks and anxiety that also came with heart palpitations. They do not go hand and hand, and often do not occur at the same time.
I've also always been a bit lethargic, but after getting these 'attacks' even more so. I pretty much have ALL the symptoms of Late Term Lymes Disease.
Recently I started having pains in my knees. I'm 35 and sick of the worry. Doctor's keep playing around and wasting my time. I recently posted on here that I was also worried that I had neck/throat/ear cancer of some sort as I get constant sore throats for years, that come with ear aches, jaw pains and side neck pain that stiffens me. My eardrum will burst and it will go away for a bit, followed by bouts of extreme migrans.
I've look and it seems rather gloomy for long term misdiagnosis of Lyme's Disease people for treatment. I'm also worried that this has hit my heart valve and I AT BEST will have a weak heart.

You should have lyme's titers drawn by a doctor if you are concerned. Unfortunately the broad and general symptoms of latent lyme's disease can be the same symptoms for many many conditions including chronic fatigue syndrome and fibromyalgia. There are no panic attacks or heart palpitations that are classic for lyme's. However, mitral valve prolapse is common in young women and can give a feeling of panic/anxiety. Be very careful with your curiousity about lyme's however. It is often overdiagnosed/misdiagnosed and treated with long courses of unnecessary antibiotics. DO NOT used prolonged antibiotic therapy unless you are under the supervision of a licensed, board certified infectious disease specialist. Good luck...

They can tell with a simple blood test.

I have had Lyme disease and the "lethargic" is severe, not minor. No panic attacks or anxiety. None of the ears/throut stuff either.

The treatment is very difficult, so they are not going to treat you without the test being positive. I honestly did not think I would live though it.

I have an autoimmune disease that can be associated with Lyme Disease. This disease also mimics other conditions and can cause Fibromialgia and Chronic Fatigue. It is Antiphospholipid Syndrome. There are blood tests and treatment, but no cure as yet. Still considered a rare disease, I know that it is not and is very common. Drs, just are not testing much for it. Here is a site that has a lot of information and links. Good luck

Lyme disease is not a simple blood test as the doc above would have you think. There are two standards of care. The one the doc above is referring to is from the Infectious Disease Society of America which is currently under a Civil Investigative Demand by the Att. General of CT for anti trust issues concerning their recent guidelines for diagnosis and treatment of Lyme disease. According to US Public Law 107-116 and the CDC, Lyme is primarily a clinical diagnosis since both blood and LP testing is unreliable. There is much research that says the longer you have had Lyme the harder it is to detect in the blood. I highly recommend you read as much as you can about Lyme and it's common co-infections from reliable sources such as I have listed below. Anxiety is listed on many of the symptom lists for Lyme and tick born diseses. If you do have Lyme, you can get better with the appropriate treatment.
Best wishes for your health.

With many doctors like the "doc" who answered your question having bought into the "easy to diagnose, easy to cure" myth, you would be smart to see an LLMD right away. The LDA site has a dr referral tool. If you can't find one in your area with the tool, try Flash Discussion at LymeNet.org. Or, go to YahooGroups and type in your state name and Lyme as one word in the search box, e.g. newyorklyme.

And for a symptoms checklist and treatment guidelines that really work, go to ILADS.org and look for guidelines - they have 2 sets, both good.

For information about neuropsychiatric Lyme, look up Brian Fallon, Director of the newly opened Columbia Lyme Disease Research Center.

A lot of people have already given you a ton of information, most of it good. Two things I thought I would add:

1.) There are 3 or 4 labs who compare your blood to tick samples from the entire USA. So if you have lived in multiple states, or travel a lot, like to sit under a tree in every state in the union, etc. it's reasonable to ask the doctor to send to one of these labs. These labs also test you against several bands of CD information. (The bands that were at the CDC until recently were proposed for testing being run back in 1991 -- doctors trying to figure out the secrets of Lyme have since then found other bands that almost always occur in Lyme, whether it's early, middle or late stage.)

I think it's so important, I didn't use insurance, and paid for the test myself.

2.) Another thing to keep in mind: There are good doctors, average doctors, and poor doctors. Half of all doctors graduate in the bottom half of their class! (That's true, but is also a joke -- we all know people who keep looking up specifics in their profession, but their interest in their clients and their field puts them head and shoulders above IQ gifted but not as good with treating patients individuals.) However -- every form of CAM (Complementary and Alternative Medicine) has quacks in it, people who are not reading about problems, are not training for problems, who pretend they're doing something and sell you "snake oil". A true Lyme Literate Medical Practitioner will test you for other things (for example, Syphilis, MS and Lupus) and check you for exhausted adrenals as well.

I knew I had a real LLMP when I had to wait a little longer one time to see my doctor. She told me they had had to break it to a woman that she didn't have Lyme disease, she had MS.

One last thing (sorry, but I didn't see this mentioned): Your immune system may be so tanked it cannot respond to the tests. This is why most LLMP will do both forms of the Western Blot test -- and all those other bands as well. I was treated for six months until they knew for sure it was chronic Lyme. So don't be surprised if a LLMP starts you with a low carb diet, to strengthen your system against Herxing. And starts treating you for, say, Bartonella as well.

But it is worth pursuing this until tick borne disease is eliminated from possible diagnosis. You must be pro-active with this disease -- if I had realized that this was so tricky to recognize and treat, I would not have been misdiagnosed for years, and now have arthritis in my hands so bad I can no longer practice as a clinical massage therapist.

But I still have my brain, and hope for remission. So find a doctor!

Good luck! Hope it's something else, and it's treatable.

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