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Does anyone here have a baby with the same congenital heart defects like my 1 month old baby? |
My baby was born Dec.10,07 and was diagnosed on Dec.11,07 with congenital heart defects.Ventrical Septal Defect (VSD) ,he's got more than a couple of holes in his heart. Hypoplastic Aortic Arch,and Patent Ductus Artereosus. He was transferred to the children's hospital a day after he was born and had his open chest surgery on Dec. 19. They made his aortic arch wider,closed his PDA and put a band to help prevent mixing of blood in his heart from the left and right ventricles.They closed his chest after 3 days and we are just waiting for him to get better.We were hoping to be able to take him home a couple of weeks after surgery but his progress has been very slow. My son also have club feet,and short neck (webbing) and he can't move his middle fingers on both hands.The dr's are thinking that he might have noonan syndrome but are not sure until my baby gets seen by a genetics dr. Yesterday the dr's found out he also have Hypoplastic Left Heart. Any1 here who's got same problems as mine? Not entirely, no. But I did/do have single ventricle. I have no wall between the ventricles and I have a hole in artial septum. I also have a pulmonary artery band. I had what is called the 'Fontan procedure' in the 1980's. Im 23 now, and Im totally healthy. If there's anything I can do to help you out please let me know. I can direct you to some support groups/forums online too if you wish Hi there, I dont, in fact i am not een ready to have children, however y best friend's auntie had a baby with these exact problems, and I just wanted you to know you are not alone, I wish you adn your family the best of luck, enjoy every precious day to the fullest with your beautidul baby :) |
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Its not a high chance, but there is an incidence of around 10% (taking into account all possible heart problems); Its higher than a lot of people realise! ...Numerous. Fortunately, most are now being treated to increase lifespan and quality of life. ...Good to know. Thanks for the heads up :) ...Try this site: ... interventions before and after heart surgery? could you elaborate please. What is the actual diagnosis ? ...It depends on the which defect or how many defects they have. There are 4 common congenital heart defects and a child can be born with one or any combination of the 4, some are born with all 4. Oft... With a "cyanotic heart defect"- the patient has lack of oxygen going to the body usually because of an abnormal blockage or malformation of blood flowing from the right part of the heart ... Sonia - Wow, you ask a very good question. However, the spectrum of "heart defects" is very broad and can range from defects where children rarely survive beyond infancy to defects where... |
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