Who here has a congenital heart defect?

I was born with a congenital heart defect. I don't know what kind I have though. But my case is really serious. Im now struggling to gain weight to be a candidate for a heart-lung transplant.. my doctors say its recommended to have this but from my view, its hard to gain weight. I'm only a junior in high school but at my rate im going, it'll probably be after i graduate.

well enough about me, do you have a congenital heart defect? how has it affect you?

I'm a lifelong heart patient. I have what's called 'single ventricle'. I've had 3 open heart surgeries (collectively called the 'Fontan Procedure') I'm 22. Right now, I'm fairly healthy, but my doctor did say I'd probably need another surgery in 10 or 15 years,and if it doesn't work I'll need a transplant. I also cannot have children.
It's scary, even for me, and honestly, it doesn't get much easier.
My condition is rare, and most of 'us' don't make it to adulthood, so I'm one of the very few. No one really knows what will happen to me.
If you ever want to talk, please don't hesitate to E-Mail, it would be nice to talk to someone who understands!!!

My sister has a congenital heart defect. She was born with aortic stenosis. In her case she has had 2 open heart surgeries during her life and several other surgeries and procedures and one thing after another.
I'm sorry you have all this to go through. One thing I think would help you is if you could find out all you can about your defect. There are lots of them and I truly believe that knowledge is power. Good luck to you my dear.

no but my grandma did, but id didnt know what ype she had