Anyone else had kids with Hypoplastic left Heart Syndrome?

My son is 18 months old and has had all 3 surgeries. I'm just wanting to meet and talk to some other folks who have kids with heart defects!
I'd love to hear your stories!

here is my sons web site

www.caringbridge.com/visit/ethandrew

WOW that is awesome!! That is so great he was able to have the last one so young. We've been told between 3 and 4 years old for the Fontan.
My son is now 4 months old, and has had 2 of the 3 surgerys. His Glenn was the 29th of Nov. and we were home by Dec. 3rd. He is such a wonderful, brave boy.
I hope all is well with Ethan. Thank you for posting this question. Take care and feel free to contact me for any reason.
Any HLHS parent can email any time at
nurse_kiddy@yahoo.com
www.caringbridge.org/visit/anthonymull...
carepage- Anthony Mullenix

Oh, Lindy, this is so sweet.....
I'm not a mother yet, i'm only a girl of 13. I'm really very proud of you to see that you did so much for your son. I just answered this question because i can't help congratulating you of what you did for your lovely son. he looks quite healthy now, doesn't he? oh you are so sweet. i know nothing about Hypoplastic left Heart Syndrome, and i'm very glad that you and your son told me about it.
I am always very concerned about kids with heart defects because i went through it too. I don't know exactly about what was wrong with me but i knew from my mum about me turning blue when i was born. I was well again in about 10 days after medication. it makes me fell so grateful for being alive this day. I had heart murmur at that time. i simply can't imagine me having blue skin at that time. i'm actually curious about what's wrong with me but never want to remind my mom about it.
Anyway, i was trying to tell you to tell your son about it when he grows up. He will feel the same way i'm feeling now.... Thank God i'm alive. Although i'm still facing palpitations, low blood sugar and hypotension, i'm not dealing with problems with my heart anymore. You are blessed, so is your child. Take care of your child, and yourself, and your family, they need it....
(i did not sign your guestbook because i did not want to take the trouble to register. This is what i would say if i did sign your guestbook. Lots of love)

Tags

　　Heartburn 　　Heart Valve Diseases 　　Heart Transplantation 　　Heart Surgery 　　Heart Murmur 　　Heart Failure 　　Heart Defects 　　Heart Attack 　　Hearing Problems 　　Hearing Disorders 　　Health Insurance 　　HDL 　　Hazardous Waste

Related information

Help! 4 yr old has heart defect and may be having prob.'s?

If you are really worried, which if that was my son I would be , see a different doctor. If you feel that your child has a problem and doctors arn't listening keep making appointments and tel...

Do I have a congenital heart defect?

this can only be known with a heart monitor

...

My daughter has a congential heart defect, be accept for SSI?

It would depend your financial status and ability to pay off the bills. SSI would not cover but perhaps Medicade would.

...

Any ideas on heart palps?

toprol is a slow release beta blocker that regulates your heart beat and also opens up the artery's so as to make the blood flow easier therefore reducing your blood pressure .it could be that...

Heart defect in 7 year old boy....question.?

Just because a cardiologist says he/she doesn't need to see you for two years doesn't mean you're over-reacting if you think you need to she him/her more often. One of the biggest h...

Should heart patients that had corrective surgery take birth control?

I'd listen to my Cardiologist first before anyone. Ask him point blank about the pill and you. You said that blood clots are not a risk for you, but did you come right out and ask about the pi...

Can a person with a heart defect be a cop?

I'm not that knowledgeable in police services. However, I think it depends on the type of cop. A desk clerk cop or patrol officer? Do you exercise often? Take a lot of medications? In my op...

Question about the heart?

In transposition of the great arteries, the aorta and pulmonary artery are reversed. The aorta receives the oxygen-poor blood from the right ventricle, but it's carried back to the body withou...