Can you have Marfan's syndrome and not have heart problems?

I suspected that my 15 year old daughter could possibly have Marfan's syndrome and now her doctor (family doctor) has ordered some tests. So far she has these characteristics: protruding collarbone, hyperflexibility, near-sightedness, crowded teeth/overbite (corrected by braces), increased arm span vs. height, thin long limbs, etc., although she is short. She was also just found to have mild scoliosis. She is at 20, which is the cutoff for Marfan's.

They did an echocardiogram a few days ago and I am waiting for the results. If it turns out that the echocardiogram is ok do you think I need to pursue this anymore or would it be unlikely that she has Marfans syndrome? We've been given the phone number for a geneticist but hesitate to go there until we have determined whether or not she has any heart or eye defects. Apparently the geneticist is not covered by insurance.

Yes. A person can have Marfan's and not show any cardiac involvement. And it is always a good idea to pursue it if you suspect it. I can tell you from experience. I had no cardiac involvement until I was in my 30's. And at 54 I just started getting some minor eye problems. I have very minor scoliosis. I would like to discuss this more with you and would appreciate it if you contacted me. I am "owner" of an on-line Marfan support group called Marfan Connection and am an active member in another on-line support group called Marfans Support and Chat and would really like to have a real on-line conversation between myself and the moderator of that group. Neither of us has children, but many in our groups do. And it may serve you well to contact the National Marfan Foundation for some information.
Not all people with Marfans are tall! One of my Marf friends is 5'2" tall, and not thin. Most of the people I know with Marfans are not stereotypical!
Please contact me!

I went through a similar situation a few years ago. I under went all of the test and had every characteristic but none of the problems. My heart is normal and my eyes are fine. The doctor said that they call that Marfanoid, which makes it sound like you are an alien. It means that you are unlikely to have health problems, but that you should get your kids checked when they start puberty.

I'm a nurse and looked into this pretty fully. I hope everything comes back as normal.

There is a website for Marfan's (not sure of it), but PLEASE pursue investigating. This is serious especially when it comes to the cardio thing! People die young of it and IT IS genetic. Have her apply for Social Security Disability immediatly (yes lots of red tape, but find a good attorney for this.) Talk to ALL YOUR/her family members...do research who had died young of heart failure...you need a link to take to the geneticist. There is no cutoff for Marfan's. Good luck and don't give up!