It's very rare, I had it myself two years ago, thank God I'm fully recovered. Since I had it, I became really interested with the subject, and since it is so rare I'm using this method to know about other cases. Thank you for your attention. Hi, I am diagnosed with the Guillain-Barr茅 Syndrome variant CIDP. I am a liaison for the GBS Support Group in the UK and also run two websites and a very active forum for those with the disorder. My CIDP has been fairly consistent since 1976. It seems that the majority of those on the forum have indeed had longer than the 'average' dose of GBS. There are many amazing stories and I never cease to be amazed by how resilient these patients can be!!
Below are the URL's for our current forum, the web-site, and our original (now closed) forum. As an ex-sufferer you are more than welcome to join and offer your experiences, and hope, to members.
All the best, Kezzi. . . Yes, actually two neighbors had it several years ago.
At first the water supply was looked into ( we're all on wells)
The gal that was diagnosed with it was well about six months later,,the man took almost a year and a half before he was back to "normal"...
These are the only two cases I know about, or have ever heard about...and I never did find out what caused it..(.the water supply was ruled out..) |
