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Uterine fibroids. Needing information. Warning - description of problem is rather graphic.?


I have two large unterine fibroids. This weekend I experienced what I would equate to hemorraging. I was on a road trip and we stopped so I could go to the bathroom to change. As I was walking to the bathroom to change pads, a large clot passed and blood began running down my legs. I was too humilated to go into the bathroom, so I told my husband we needed to stay in a hotel so I could clean up. The amount of blood was unimaginable. I am currently waiting on my insurance company to approve a surgery MRI guided ultrasound surgery a non invasive procedure- to alleviate the fibroids. What I want to know is whether there are any incidences where women have bleed to death from uterine hemorraging due to fibroids. I am getting ready to write to the CEO of my insurance because as I wait, this situation does not get any better, it only gets worse. I do not want to end up bleeding to death. I have done a google search and have not found anything conclusive about mortality rates related to this

Fibroid size answer - I have 4 1 is 6 cm, 1 is 4 cm, 1 is 3 cm and the last one is 2.5 cm

There are reported cases- I know a person who was admitted to hospital unconcoius becasue she had bleed so much from her fibroids.
If your fiobriods are this bad, i doubt that non-ivaseive ultrasound treatment is going to work or at least be enough talk to your doctor about how bad these are getting and talk to them about your best option.
A lot of the MRI/ultrasound non-ivasive surgical treatments, which are more experimental, are less likely to be covered by your insurance company.
If you are taking anti-inflammatories for any pain, I suggest you stop taking them (after phoning your doctor), because these can increase bleeding.
If the insurance company wont operate, next time the bleeding gets so bad go straight to the ER.

BTW- I've always found phoning is better than writing- they have to give you an answer and you dont have to wait weeks for them to get to your letter in the mail pile

contact the national uterine fibroids foundation for mortality stats http://www.nuff.org

I have never heard myself of someone bleeding to death from fibroids but you can bleed to death through bleeding.

If the fibroids are causing such major bleeding you need help now. Like an emergency D & C. You can die through blood lose. As I gather you would know, so need to stop bleeding like that as soon as possible.

Such long term bleeding can also lead to long term problems like severe anaemia.

Push your insurance company with letters, faxes and phone calls.
Let you Doctor know straight away.

I live in Australia so treatment is free and immediate so I can not say how to help with your hospital treatment in the USA.
But nagging, pestering and getting on their nerves can work wonders some times.

I have one uterine fibroid but have been going through some crazy bleeding. Every month I call the doctor and the assistant assures me that no one has bleed to death but what does she know. My doctor is ignoring my fibroid and putting me on a combipatch for hormones to see if it regulates the bleeding. How big are your fibroids, if you don't mind me asking? Mine is 2.5cm all around.

Call your OBGYN if you have one (page him at emergency #) or go to an urgent care facility or emergency room. Especially if you are feeling very weak. You may need a blood transfusion, depending on how much blood you've lost or how much anemia it's caused.

From my similar experience (I was touring the Redwoods) we had to quit our trip. I suffered from constant hemorrhaging for several month and my blood count went down, I was weak in pain and discomfort. They did a D@C on me which resulted in a terrible burst of hemorrhaging a few days later. Luckily I just got home and was ushered straight to hospital. They had to wait a few days for me to recover a bit from the terrible loss of blood and then they performed a hysterectomy. They told me the fibroid was as big as a 5 month old embryo. So I think the sooner your insurance approves a hysterectomy (I am not sure if alleviating the fibroids is enough) the better it is.

Next time you have a bleed, go to the emergency department at your local hospital. They will likely take a blood specimen from a vein to check your haemaglobin levels, and possible electrolytes and creatinine.
If your haemaglobin levels are low (below 100g/L), you may be given a blood transfusion until the cause of bleeding can be determined.

I had same experience as you. One day I was doing my MBA class during the first day of my period and I wasn't feeling very well. I dropped the class and going to my car to return home. Then a big clot passes and blood running down my legs. I was so embarrassed and I had no way other then returning home, it was a total mess on the car seat.
I had many fibroids inside my uterus. When I was 24 I had my 1st surgery to remove the fibroids. Doctor removed 28 fibroids of different size. Before the surgery I had anemia and I was very sick because of dizziness and weakness due to the anemia. So doctors said I need the surgery as soon as possible otherwise I may have severe problem.
But the amount of bleeding didn't reduce so much after the surgery as well. Doctor advised me to get pregnant as soon as possible. The fibroids grew again just in 6 months.After 22 months of that surgery luckily I got pregnant ( Which I thought I'll never be)
Now I'm 25 weeks pregnant with all the fibroids. I hope doctor will remove my uterus so that I get rid of the bleeding problem. My bleeding was so bad like you, I cannot to go out even to my work during my period because anytime I could fell in an embarrassing situation.
I think the permanent solution for my case is to remove the uterus as I have over 30 fibroids. You have 2 fibroids, so you can remove the fibroids only by keeping the uterus.

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