Special kind of cancer...?

Bit of a special question. A 10yo friend of the son of my housekeeper got struck by a very rare cancer, that they say only 30 people in the world are known to have had it. The doctors are calling to hospitals around the world to see if there's an oncologist who has had a case like this and has the experience of how to deal with it.
If by any chance or huge coincidence there's a doctor on YA : here's a description of the cancer like I heard it : he's got a tumor in the brain, with a metastasis on the spine and behind his left eye ball. The cancer is not transported by the blood and does not affect organs. If anyone has an idea... (and plz, if you don't have anything serious to say, then don't say anything). Thx

Not a doctor, but I do research on this stuff. I hope the doctors are calling both Sloan Kettering Cancer Center (in NY) and M.D. Anderson Cancer Center (in Texas). Both are world renowned and deal with very difficult cancer cases with great success.

http://www.mskcc.org/mskcc/html/44.cfm

http://www.mdanderson.org/

sounds like a retinoblastoma or a neuroblastoma.

Multiple neurofibroma or neurofibrosarcoma..

I am unable to identify the tumor from your description, but if it has an involvement to the spinal chord it is highly malignant as most brain tumors are. Just light a candle for her.

54 types of cancer have been reversed using glyconutrients, Have them read info on these sites. glycoscience.org and glycoresource.com
What you need is glyconutrient powder. MIT says this new science will change the world of health care. I pray those doctors are open minded and are not money hungry. They rarely look at something they are not trained in like healing the body.

i recommend the aflac cancer center at scottish rites hosp. in atlanta ga. my son also has a rare cancer and they have done very well by us.