I need help i tested pos. on my ana 12 profile it came back positive 1:40 speckled cardiolipin igm 18.6?

i have been feeling ill for quite awhile, i was dx with fibromyalgia about 2 years ago, the drs. knew i had some form of auto immune disorder but havent aggressivly searched for anything, recently had a bone scan done and shown that in shoulders, elbows wrists, knees, there was evidence of degeneritive arothopy, my pain mgt. dr. advised me to go to a rheumy. i got in with in 1 week, this should of been my first clue, the dr spent less then 10 mins with me , but did order blood work, on my ana 12 profile it came back positive, speckled, and the titerwas 1:40 my complement c4 was 15. my cardiolipin was18.6 anti-ds dna ab by farr was 2.8, anion gap 19.0 and rdw was 15.9and my crp was 11.4, my question is i have suspected that i have had lupus for awhile, i have all the classic symptoms, but my first visit with the rheumy, he automaticly without haveing any previous history said i dont think you have lupus or rheumotoid arthritis, and without seeing blood work, does anyone have any answer

Hi, Im Chris I have Lupus with Central nervous system involvment, co-own a lupus/autoimmune yahoo support goup, and do a lot of research for the group, thus have some of the books that Rhumatologiat use. Your ANA of 1:40 speckled is similar to mine, however, it will usually be smooth, or coarse. Yours is of an atypical pattern for Lupus, which they may not be able to interpret yet.

with the C4, there are severeal c's: C3, C4.C1 q, and subsets. With a C4 it does show disease activity, so does a positive CRP. However, everything seems so borderline, it may take them a bit to figure out exactly where the disease is going, and exactly which disease you have.

With your ANA that low (a low Positive) and the other positive, they do know you have a connective tissue disease. It seems the only one they CAN rule out is Rhuematoid Arthritis.

When they test ANA, They are testing for Sjogren's, Mixed connective Disease, Sjogren's, scleradoma and others. So like for the rest of us, with blood work done. It is kind of a waiting game. while the doctors decide what to do and test you for, because not all these disease's take the same medications. Also, many feel like and mimic Lupus at first, but as time passes, they change and feel like and do what their diseases do. so you will have more testing done. The full diagnostic time, can be 6 months. Also, many of the symptoms overlap, at any given time. But there is active autoimmune activity going on.

My educated guess, and that is what it is, from all my years of research, and people in my group, is Mixed connected Tissue disease at this point, which mimics anything early in it's disease progression, and can turn into anything.

crp-11.4, im not positive but from what ive read because my crp has been from 50-118, that it would be higher than that if it was lupus, im not positive though, i would keep visiting your doctors though, i know they may not see you for a long time but they mainly will be focusing and your blood work and how that changes

As there is no specific test for Lupus, I'm going to venture a guess and say you may have lupus, but more likely primary antiphospholipid syndrome. I have this disease and many Drs are not very well versed in it I am including a couple of sites for you to look at. I'll send you more if you are interested
http://www.labtestsonline.org/understand...
http://www.hughes-syndrome.org/snapshot....

Hi these are letters from folks who have tried the Nutritional route using the GNLD suppliments , please contact me at dhiner@gmail.com
I work with a Board Cert nutritionist and he reccomends thaes suppliments .
Letters
The following letters demonstrate
some of the nutritional steps
which can be taken to search out
the root causes of problems like
lupus, chronic fatigue, and
fibromyalgia.Lupus
Dear GNLD,
I came to you February of Last
year, after being referred to you by
a friend. I had a diagnosis of
Lupus and the physicians told me I
needed to go on medication. I told
them I did not want to because of
the side effects. The Lupus was so
bad I could not even go up or
down stairs without serious pain. I
could not sit down or kneel when I
began the dietary changes and
supplements you recommended.
My wrists, elbows, knees and
ankles were swollen.
You were kind enough to spend
time with me describing the nature
of the problem. You encouraged
me to make different dietary
choices. I have avoided nightshade
plants, dairy and sugar. I am also
avoiding gluten. I had the mercury
amalgams removed from my
mouth. In addition, I began using
Formula IV Plus, Vitamin E and
Salmon Oil. These changes made a
significant difference in how I felt.
Within three months I was a
completely different person.
My ANA test results started to
drop. By December of 1999 the
test results were back to normal.
At this point the doctors are telling
me that my Lupus is in complete
remission. I am continuing the
same diet and supplement program.
--Abby
Comment
Abby did a lot of work to
improve her immune system, but
she had a serious problem.
Mercury bonds with sulfur bearing
proteins in thetissue. We felt this
could have been contributing to
the problem in view of the large
amount of mercury in the mouth.
Sugar can also combine with
tissues promoting auto-immune
problems.
Nightshade plants can create
autoimmune-like problems for
some people. Milk and wheat are
common allergens.
Salmon Oil decreases the
likelihood of autoimmune activity.
Vitamin E is necessary to prevent
the oxidation of the Salmon Oil at
the tissue level (possibly aggravating
the problem).The Formula IV
Plus was added to provide a
鈥渟afety net鈥?and also for the
hormone nourishing grain oils.


Chronic Fatigue
In 1991 I found myself overcome
with exhaustion and nausea
among lesser symptoms. After
three months my doctor finally
found that one of my hormones,
prolactin, was seriously elevated.
Well, I wasn鈥檛 pregnant, and a MRI
showed that I didn鈥檛 have a tumor
on my pituitary gland. My doctor
could do nothing more for me. It
was then that I remembered my
friends at GNLD.
You immediately put me on
Formula IV (a basic multiple with
grain oils to nourish the glands).
Up to this point I had been dragging
myself around, nodding off
for hours in the day, and living on
club soda and crackers. After
Formula IV, I began to live again. I
wasn鈥檛 healed, but I could get
through the whole day and have
some energy left for the evening
chores. Soon I began taking other
GNLD supplements and started
feeling even better. Life was
returning to normal.
I lived with what I self-diagnosed
as CFS (my doctor does not
recognize Chronic Fatigue Syndrome)
for seven years. I am well
now, but I still take the same
vitamins as before, because I am
convinced that even a 鈥渘ormal鈥?br> person needs the supplemental
nutrition that is missing from our
diets, as well as environmental
protection.
More recently, I was troubled
with tendonitis in both my thumbs.
From improper use, I couldn鈥檛
even pick up my wastepaper
basket. I put myself through
therapy and wore braces, but they
were still painful. It was then that I
was encouraged to take Salmon
Oil. I became pain free in a very
short time. I use this product
regularly for maintenance.
I thank you for your continued
support, caring, and encouragement.
You and your staff have
been a friend to me, and I appreciate
your help many times over. --
Teri
Comment
Formula IV contains both grain
and legume extracts and naturally
sourced B complex vitamins. Both
of these can both invigorate the
glandualr system and also aid the
body in establishing a natural
balance or 鈥渉omeostasis鈥?or the
glandular system.