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Ehlers-Danlos syndromes?


classic types I and II. What do you know about this syndrome. Any links that would be helpful would be appreciated.
THanks

Ehlers-Danlos syndromes are a group of genetic disorders that usually affect collagen, which is a protein that acts somewhat like a glue and keeps our tissues together. Types I and II are now termed "clasical type"; type II has milder effects than type I.

Classical type:
Marked joint hypermobility, skin hyperextensibility (laxity), and fragility are characteristic of the classic type of Ehlers-Danlos syndrome. The smooth, velvety skin is fragile and tears or bruises easily with minor trauma. Joint dislocations and scoliosis are common. Joint instability can lead to sprains and strains. This classical type is inherited as an autosomal dominant genetic trait (directly passed on from one parent to child).

Skin protection (from injury of trauma and sun, etc.) is critical. Wounds must be tended to with great care and infections treated and prevented. Suturing can be difficult as the skin can be extremely fragile.

Joint injury must be avoided. Occasionally, bracing may be necessary to maintain joint stability. Exercises that strengthen the muscles that support the joints can help to minimize joint injury. Contact sports and activities involving joint impact should be avoided.
http://www.medicinenet.com/ehlers-danlos...

Basic information:
http://www.nlm.nih.gov/medlineplus/ehler...
More information:
http://www.orthop.washington.edu/uw/ehle...
ED Foundation (information and support):
http://www.ednf.org/
List of support groups:
http://www.edstoday.org/support/index.ht...
For medical professionals:
http://www.emedicine.com/ped/topic654.ht...

These are all American sources. There are lots of resources from the UK, too.

It is a complicated disorder. Here is a website that will help answer some questions.

http://www.nlm.nih.gov/medlineplus/ehler...

Here you are
Ehlers-Danlos National Foundation (EDNF)
3200 Wilshire Blvd.
Suite 1601
South Tower
Los Angeles, CA 90010
USA
Tel: 2133683800
Fax: 2134270057
Tel: 8009562902
Email: staff@ednf.org
Internet: http://www.ednf.org

1) http://www.medicinenet.com/ehlers-danlos...
2) http://www.emedicine.com/ped/topic654.ht...
3) http://children.webmd.com/Ehlers-Danlos-...
Hope this helps
SH

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