|
|
| *Home>>>Ehlers-Danlos Syndrome |
Please help me find a doctor to treat Ehlers-Danlos in Saginaw, MI? |
My family physician is pretty sure I have hypermobility type Ehlers-Danlos Syndrome (EDS). However, she has no experience with it. I went to a local Rheumatologist today and boy, what a joke. She had no idea what it was, and couldn't care less. My understanding is that many EDS patients see rheumatologists, I just need to find one in my area who had experience treating it!! I'm in Saginaw, MI, but I would be willing to travel elsewhere in Michigan if someone knows of a knowlegeable, helpful doctor. Any help is appreciated, I am in a great deal of pain and can't take much more. Thanks in advance for your help!! I dont know if I can help you, but my mom and I both have EDS hypermobility type. It's not a big problem for me now but I understand it will get worse. My mom and I have run into the same problem as you have, that no one knows what it is or how to treat it. However she ran into a very talented physical therapist who has been identifying her problem spots and working with them as they come and my mom has seen a lot of improvement. This physical therapist is innovative and open to ideas. My mom used to think her knees were beyond repair and now they dont bother her. Now we arent in MI, but my advice to you is that perhaps a doctor with experience with EDS isnt necessarily what you want (because I dont know that you will find it) but rather a doctor that is good at what they do and willing to learn about our type of EDS (the fact that your rheumatologist didnt care is a bad sign). My mom doesn't understand what is so helpful about a rheumatologist. She recommends a good GP and a good physical therapist. I wish you the best of luck! I understand how painful this disorder can be. Ehlers-Danlos Syndrome (EDS) is a genetic disorder that can cause stretchiness in the skin or incredible flexibility in the joints. like a said, Ehlers-Danlos Syndrom is a genetic disorder and medical science states that most genetic disorder are untreatable. sorry. But don't worry, It might be fun. think about, stretchy skin and extremely flexible joints. |
| Tags |
| Electromagnetic Fields Electrolytes Elder Abuse Elbow Disorders Elbow Injuries Ehrlichiosis Ehlers-Danlos Syndrome Edema Eczema Ecstasy Echocardiography EBV Infections Ebola Virus |
| Related information |
What is EDS? Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unsta... I was diagnosed with ehlers-danlos in 1993, I was 10 years old (23 now). I have also been diagnosed with hyper-mobility. I already have osteoarthritis in my left knee and all my joints pop out. I t... Benign Hypermobility Syndrome is one of the names of Hypermobility Syndrome. Other names are double jointed or loose joints or hyperlaxivity. It is called benign in difference to the malign types... In the US, there's 1 case of EDS for every 5,000-10,000 people, according to the Ehlers-Danlos Foundation. Other sources say 1 in 400,000. Unfortunately, sometimes patient foundation tend to... Ehlers-Danlos syndromes is a group of disorders which share common features including easy bruising, joint hypermobility (loose joints), skin that stretches easily (skin hyperelasticity or laxity),... YOU NEED TO SPEAK WITH YOUR DOCTOR! GET ON THE PHONE WITH HIM OR HER AND ASK THEM WHAT IS GOING ON WITH YOUR BODY! Seroiously, asking people online is really going to get you few good answers, beca... aww, sweetie, first make sure you get plenty of rest, exercise and drink plenty of water. this will be the best start possible...really.talk to a school counselor or a relative that you trust. God... Okay you are 12 years old. You need to TELL YOUR PARENTS!!! Let them decide what to do! Which in this case needs to be for you to go to the doctor! Point. Blank. Period. With your extensive medical... |
Categories--Copyright/IP Policy--Contact Webmaster |