How widespread is Ehlers-Danlos syndrome?

In the US, there's 1 case of EDS for every 5,000-10,000 people, according to the Ehlers-Danlos Foundation. Other sources say 1 in 400,000. Unfortunately, sometimes patient foundation tend to exaggerate figures.

According to wrongdiagnosis.com, about 54,400 people are affected by Ehlers-Danlos in the US.

According to an article from December 2005 on Medscape, the estimated overall prevalence of EDS is 1 in 5000 people, depending on type. It affects males and females of all racial and ethnic backgrounds equally. Classical-type EDS occurs in 1 in 10,000 to 1 in 20,000 infants; it is one of the more common forms.

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