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I need to find or develop a safe chat area for Dystonia -our area has been hacked?


Hi
I frequented a chat area for dystonia and other movement disorders, it was wonderful till we got "assaulted" if you will and the room was shut down.

I need a room where people can be booted or banned, for real with similar controls that most game sites have for excessive chat and such, making it a free exchange for a rare disease area.

I unfortunately can not trust the site to come on line again with proper controls, but have found for many the comfort and information exchange for a rare disorder is extrodinary.

Please just help point me in the right dircection, and not to wemove.

There is an excellent forum that you can enter two ways. I have it saved in favorites and not bringing it up for some odd reason. You can search Brain Talk Communites Support forums and scroll down to Dystonia...you can try this url:
http://brain.hastypastry.net/forums. This is created by the Harvard Massachuetts Hospital and has numerous conditions and diseases on it. I use it for my Myasthenia Gravis which at this point is very stable. Let me know if you have a problem with it. Also have you gone into yahoo groups and searched in there?

Hope this helps. I do highly recommend the Brain Talk Communities. I checked and there are quite a few people in that forum.

Jean, I noticed you added me to your fav contacts. You can contact me at missloretta2001@yahoo.com.

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