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Does anyone suffer with Dystonia.? |
My wife has been diagnosed with dystonia,she is currently having botox injections in the affected muscles.Some days she finds even the easiest of tasks to be hard.Is there any helpful tips you can pass on to help.I know there is no cure but to make life that little bit easier would be a help.It would also help to hear other sufferers stories. Thanks. You didn't say what type of dystonia she has. I have cervical dystonia and get botox injections every 3-4 months in my neck. It does wonders for me. I also take Mysoline for the dystonia and Inderal for tremors. I'm sure you must be seeing a neurologist, hopefully one who specializes in movement disorders. When I have bad days, Aleve seems to help. I know that's not much help, but maybe if she is really bad, your doctor may consider dbms. That seems pretty drastic, but I hear when it works, it's great. If you haven't already, check out this link: http://www.dystonia.org.uk/index.html It might be worth giving them a call to find out the different ways that you can help and support your wife. Best of luck to you both. |
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Treatment team Treatment for dystonia involves the interaction between a neurologist, psychiatrists, and physical and occupational therapists. Treatment may involve a neurosurgeon for symptoms t... It is contraction of the muscles near you spine at the point of your neck. It is usually involuntary and causing twisting or repetitive movements and bad posturing. There is no known cause. Cerv... Dystonia is a neuromuscular disorder that causes a person muscles to spasm and contract. These contracted position may be held for long periods. Giving the person a twisted, uncomfotable and someti... I think you are looking for "Dopa-responsive dystonia." It is usually treated with a dopamine drug, such as Sinemet or Stalevo. These treatments are not a cure, but will help you manage... its a symptom, not a disease. like sore throat is a symptom of strep infection. ...Just got through reading about it. Sorry to hear you have it. I'm stuck with fibromyalgia and diabetes. Got over depression last year, though... and I'm pretty happy about that. If you do... There are many medications that have been shown to improve dystonia. No single drug works for every individual, and several trials of medications may be necessary to determine which is most appropr... Yes ,I'm a neurosurgeon and I managed lot of patients with this drug , it gave excellent response ... |
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