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How has dementia affected your life and those loved ones around you? |
Only child w/father who has dementia.Still learning so much.Still scared...for him and mom. Pfffffff....unfortunately dementia is not curable. On the contrary, the process is progressive, even if with periods of stagnation. As everybody in here mentioned, dementia is an early stage of the Alzheimer disease, which is worse. I can see your concerns but you must not be AFRAID...you just have to learn how to handle somebody having dementia. IT'S VERY DIFFICULT FOR THE FAMILY. I'M SO SORRY TO HEAR ABOUT YOUR DAD. MINE HAD IT TOO. I JUST TRIED TO CHANGE THE CONVERSION BUT IT DIDN'T USUALLY WORK WITH HIM. FINALLY LEARNED TO JUST GO ALONG WITH HIM IT KEPT HIM HAPPIER THAN TRYING TO TELL HIM WHAT WAS THE TRUTH. GO TO SOME SELF HELP MEETINGS IN YOUR AREA FOR THIS, USUALLY THROUGH THE HOSPITAL. ALSO SOME HELP WITH ADULT DAY CARE IN THE AREA. THERE ARE BOOKS ALSO TO READ. My grandma is 93 and she cant remember what she asked you a second ago and repeats herself over and over ,its frustrating but you just have to cope with it.it will happen to you someday. A close family friend's mother has dementia, in the last stages. It was very difficult to see her go from someone who was once incredibly intelligent and bright to someone with no memory of anything. She can no longer speak or walk by herself, and needs to be changed and spoon fed. My friend tried to take care of her by herself, but eventually it became too much, she has a husband and two teenagers living in her house, and it was just too much strain. She is now in a home for the elderly and is being cared for better than my friend alone could have done. Unfortunately guilt prevents many people from putting their family into a rest home, but as long as you ensure that it is a reputable establishment (usually they have tours and you can visit whenever you like), it can take a large strain off the family and still give you accessablility. I would reccommend finding a support group in your community, my friend found hers to be a godsend. Good luck to you and your family, and I hope this answer helps a little, if only to help you know that you and your mom are not alone. Well prepare yourself as you are doing is good. My mom had dementia which is basically the first stage of Alzheimer's. I believe she now has full blown Alzheimer's. But with dementia your dad will have memory lapses. He might get lost when he goes out. My mom used to go out alone and call home saying she was lost and couldn't find her way home. She was only three or four miles away and since she had lived in this town most of her life she should never had gotten lost. Or she would call home and say she had a flat tire. Once there the tire was flat. BUT the tire rim was bent all to h*ll. Think she hit a curb or something? She was in her sixties then, she is now in her late seventies or 80 years old. Today she might know me as Robert. He is my nephew. But tomorrow I might be my own brother. And the day after she might actually remember that I am Roland. My dad has to wash her up, dress her up, and YES she must wear a diaper. It isn't the best of life, BUT at least I can still see her and enjoy her for whatever time she has left. Try to find the funny things that take place and make the best of it. Cause you never know when the time comes. Take care God Bless and I wish your dad the very best. My mother had it in her final years. She stayed at a special home. My little daughter went to visit and it was cute as you'd get introduced around at least once every hour. One morning my mom said I didn't look like her daughter and asked me if I really was her daughter. Before she passed away of congestive heart failure she didn't recognize her oldest daughter and thought she was a hospital worker. There is a yahoo group called dementiarescue which I found very helpful-it is made up of both caregivers and patients. |
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